Forum Replies Created

  • rochelle-johnson

    Member
    November 1, 2023 at 1:14 pm in reply to: Is finding staff dreadful?

    I think this is definitely a problem all over the country. In Ohio, I had to uproot and move to a larger metropolitan area to try to find better care. It’s been a bit better here but still such a struggle to find reliable care. Like you said, the going reimbursement rate is far less than fast food pay with ridiculously greater responsibility requirements (literally someone else’s life in their hands). Except for those rare individuals with a real heart for helping others, there’s no incentive for people to enter or remain in this line of work. I’ve thought of a solution, but I don’t know how to get it off the ground. Wealthy elites are often looking for places to put their money to get tax breaks. I wish a foundation was established where we could apply for grants to pay our caregivers an additional stipend on top of their Medicaid reimbursement. Does anyone know where to start with something like that?

  • rochelle-johnson

    Member
    January 4, 2022 at 2:41 pm in reply to: Wheelchair Repair Woes

    I know this isn’t the most stylish fix, but I buy plushy seatbelt covers and slide them over the armrest. Some have velcro to adjust it however you need it. Right now I have a ridiculous looking animal print on one armrest, but – hey, it beats the scratched-up elbow I used to sport!

  • rochelle-johnson

    Member
    October 14, 2022 at 7:20 am in reply to: Covid is here, I think

    Just wanted to support those saying rapid tests are unreliable. Yesterday I tested negative at home and positive at the doctor’s office. This is my second time to have it in 2 months, which I understand is very rare. One fantastic tool available to anyone at high risk for severe illness is the monoclonal antibody infusion. I got this in September, and it cleared my symptoms in days and kept the condition from worsening. I’m headed to the hospital later today to get it again to fight this current bout. Definitely worth it. This stuff is so scary for those of us with already compromised respiratory systems!