[cocoseverest]

Thank you for your replies! I do have a pulse ox machine, I haven’t had a chance to set it up. She is still breathing pretty good on her own and since started Spinraza (2 injections down) and so I didn’t feel a need to set it up for now, but you both are right! This would be a good time to set it up, especially through the night.

As for the airway clearance system, I just asked our medical supply company how to obtain one this past Friday, before all of this started even, because she still gets milk stuck in her throat and gurgles constantly. I plan to ask her doctor to prescribe one on Monday.

She seems to be doing well for now. The indicators you guys suggested help, and she seems fairly normal, just congested, and mostly clear drainage. And really mucusy poops, hehe. So I will just continue to keep a close eye on her, and call her doctor first thing in the morning.

Im glad to get a response. This is all new to her dad and I, and we just don’t know how to handle sickness just yet. Thank you.