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Lisa replied to the topic Do You Enjoy Reading? in the forum Adults With SMA 3 months, 1 week ago
I usually also do audiobooks- especially on a slow pace- i really enjoy that i can set the pace of the reader. It helps me immensely to be able to contextualise the reading and the reading speed to the kind of day I have had. Currently reading / working with an interesting statistics book called Statistics for People Who (Think They) Hate…[Read more]
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Lisa replied to the topic Quarantined Birthday in the forum Adults With SMA 3 months, 1 week ago
For my quarantined birthday, i lit some candles, prepped a lovely meal and played a birthday playlist of songs i have liked and listened to since my childhood- it was v v different- but extremely special
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Lisa replied to the topic Raising a daughter to adulthood in the forum SMA Parents and Caregivers 3 months, 1 week ago
Go Halsey!
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Lisa replied to the topic I'm Having a Party! Take that Coronavirus in the forum Coronavirus (COVID-19) and SMA 3 months, 1 week ago
This is so wonderful. Congratulations, DeAnn 🙂
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Lisa replied to the topic I got a haircut in the forum Coronavirus (COVID-19) and SMA 7 months, 1 week ago
thank you so much for understanding, DeAnn 🙂
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Lisa replied to the topic I got a haircut in the forum Coronavirus (COVID-19) and SMA 7 months, 1 week ago
Hi, thank you so much DeAnn for putting the words and dilemma that i share too in such articulate words. Especially because i live with my older relative and do not want to take any more risks than i have to. This week it really came to a head because I am a tutor and one of my students’ parents asked me to come and bicycle to their place so that…[Read more]
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Lisa replied to the topic Help me figure out how to celebrate graduating? in the forum Going To College When You Have SMA 7 months, 1 week ago
ooooo Congratulations! Sounds like a great moment in your life!
i am sure you are going to enjoy it by marking it in a special manner in your unique way.
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Lisa replied to the topic Are you resuming normal activity soon? in the forum Coronavirus (COVID-19) and SMA 7 months, 1 week ago
This is such a beautiful reminder about not falling prey to idea of capitalism and productivity. I think i needed to hear this to feel more at easy with the days that i feel not quite ready to ‘take on the world’ as much as just being ready to work on myself and educate myself of my own biases
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Lisa replied to the topic Summer Reading/Watching in the forum Disability in Media 7 months, 1 week ago
Fleabag is this beautiful show from a one woman theatre piece by Phoebe-Waller Bridge. It is available on Netflix i believe. It works with dark humour and the inner life of a ‘messed up’ young owman.
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Lisa replied to the topic Summer Reading/Watching in the forum Disability in Media 1 year, 2 months ago
Right now, I am binge watching with my spouse Fleabag and it really is bringing much artistic joy into our life. I am also reading When Breath Becomes Air by Paul Kalanithi- a very moving medical memoir- seriously heartbreaking and life affirming at the same time. I am also finishing Young’s Anatomy and Physiology book for my pre med tuition kids.…[Read more]
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Lisa replied to the topic Talking Dating and Disability in the forum SMA and Dating/Relationships 1 year, 2 months ago
Thank you for this thread, it is giving me so much strength and courage. I had joined the forum hoping to find resources to guide me through my infrequent but intense bouts of caregivers depression. Thanks. I will hold this close.
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Lisa replied to the topic Summer Reading/Watching in the forum Disability in Media 1 year, 2 months ago
Thanks for this thread. I realised i have stopped talking about other things than caregiving for a while.
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Lisa became a registered member 1 year, 2 months ago
Hey Lisa, welcome! I’m Kevin Schaefer, one of the forum moderators, and I have SMA type 2. Please let me, DeAnn, or Alyssa know if you have any questions, and feel free to introduce yourself in our welcome forum. Thanks for joining us!