Jim Schneider

Going on our first real vacation since Covid started in middle of June for 2 1/2 weeks.  Plan on getting the booster end of May so it fully effective by the time we leave.  I think it is smart to get it sooner rather than later if your planning on travel or going to any events where there will be crowds.  With SMA on board you shouldn’t have a pr…[Read more]

First talk to YOUR doctors and ask their opinion.   Second the 2 main vaccines don’t use a live virus so that isn’t an issue.  From my research the most common side effects if any are sore arm, slight fever and feeling really tired for a couple of days.  Me personally as a 50 year survivor of SMA and one of the high risk elderly, I just wore o…[Read more]

Now that this has been out there awhile, is anyone taking it that is on Medicare?  How is it covered?  Have a call in to the PAL rep but haven’t heard back.

Call AT LEAST once a week.  After this long it is past time to start up the chain of command until you get to someone that will make it happen.  I have plenty of time on my hands to be a real pest and that seems to be what it takes sometimes.

Between voice access and Google Assistant I am able to do anything I want on the phone without ever touching it! Google is doing unbelievable things for the disabled community, check it out.

As I’m on Medicare with a supplemental and a drug policy I have been concerned how this is billed.  If it is as a drug and is billed to the drug plan I would be out of luck.  My Spinraza is billed to Medicare part B and is paid but my drug policy isn’t going to pay anything.

Anyone else in the same predicament?

Unfortunately the last few years I have had cause to be transferred many times.  When the hospital calls to confirm an appointment we always inform them we will need a Hoyer lift to transfer.  I bring my own sling along because it works better than theirs.  I refuse to allow transfers by lifting me, been hurt before and never again.  More and mor…[Read more]

Alyssa what are they?  They look really warm.

Google Pixel phones have a voice access feature built in that lets you totally control the phone by voice.  You can do everything totally by voice.  It works great!

What did you have to do to qualify?  Do you have to live in a certain area for them to provide a dog.  How long is the waiting list time?  Hope everything goes great for you in the training.

Good luck, Jim

Demand they wear masks or find a new supplier even if it means a delay!

Hopefully a more forgiving world where the main belief is “Live and Let Live”.

I have a folder with a drug list, Doctor contact page with all my doctors info listed, full medical  history and a list of procedures and major tests.  It also has a will, power of attorney and medical directives.  (Not really needed because after 45 years my wife knows me well enough to know what I want.  Plus I told her I would come back and hau…[Read more]