Biography

Name

Jay Pateakos

Nickname

jay-pateakos

Year of Birth

1970

Gender

Male

Location

Marion, MA

What best describes you?

Caregiver

Short Bio

My son Alex was diagnosed with SMA Type 1 in October of 2004.  He was given about two years to live but here he is, just about to go into high school.  We cherish every day we have with him.

What type of SMA do you or the person you are caring for have?

Type I

How long have you or the person that you are caring for had SMA?

14 years

How did you hear about us?

SMA News Website

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