Kevin Schaefer

Hey everyone!

Check out the latest podcast here. In this episode, I chat with Tyler Dykema from Grand Rapids, Michigan. Tyler is an artist, musician, and punk rock connoisseur who has SMA Type II. He talks in this episode about growing up…[Read more]

Happy new year! I think we’re all relieved to put 2020 behind us and to have more hope for 2021. Did you all do anything fun for the holidays?

As we kick off this year, I wanted to ask you all if you have any feedback for us here at SMA News Today. Is there anything you’d like to see on our various platforms-main site, forums, YouTube chann…[Read more]

Hey everyone! Hope you’re all having a great week so far.

Check out Michael’s latest video here. He talks about how in spite of all the chaos and hardships of this year, one positive has been an increase in the use of telemedicine. Michael shares his experiences with telemedicine and talks abo…[Read more]

Hey everyone! Hope you all had a great weekend.

I wanted to let you all know about an upcoming virtual event for teens and adults in the community. Cure SMA is partnering with PPMD (Parent Project Muscular Dystrophy) for a virtual holiday mixer. This is a 90-minute video call for individuals ages 14 years and older living with Duchenne, Becker,…[Read more]

Hey everyone! Hope you’re all having a great week.

Check out Michael’s latest video here. He talks about the steps he took for his Evrysdi approval and shares tips for others in the SMA community.

Are you pursuing Evrysdi? Do you have any questions about the process? 

Believe it or not, we’re almost at the end of 2020, finally. It’s been a wild and tumultuous year, but we’ve made it this far.

Since this is such an unusual year, and many of us won’t be able to see family and friends in person, we have to get creative for holiday plans. There will definitely be a lot of virtual hangouts with families, but I’m…[Read more]

Happy Thanksgiving everyone! If you don’t celebrate this holiday or aren’t in the U.S., hope you enjoy the day nonetheless.

It’s no doubt been a wild year, to say the least. In my latest column, I reflect on all that’s happened since March and express my gratitude for the people in my life. Hope you enjoy this one.

Anyone you’d like to say thanks to?

Hey everyone! Hope you’re all having a great week so far.

Check out the latest podcast episode here. In episode 70, we talk with entrepreneur Ron Borgschulte. Ron is the owner of Partners in Medicine, a company that works with Kinova Ro…[Read more]

Yesterday, I had my annual urology checkup. The only part of this I dread quite a bit is the x-ray, mostly because it means I have to transfer out of my chair. I touched on this in my last column, but the transfer process is tough for me these days. It requires whoever’s transferring me to remove my JACO arm and tray, and then reattach both d…[Read more]