Kevin Schaefer

Hey everyone! Hope you’re all having a great week so far.

Check out the latest podcast episode here. In episode 50, Michael and I discuss updates on Roche and Genentech’s experimental therapy risdiplam. Now that this drug is under FDA-approval, we answer que…[Read more]

Hey everyone! Hope you all had a great weekend.

Ok, so the other night I watched the Jim Carrey/Zooey Deschanel rom-com Yes Man. In it, Carrey plays a depressed loans officer who can’t get over his ex-wife, and as such he’s extremely antisocial. Then one day, an old acquaintance drags him to a self-help seminar, in which the spea…[Read more]

Hey everyone! Hope you’re all having a great week so far.

Check out my latest column here. I wrote about a graphic novel I’m currently working on, and how it features a disabled protagonist. It’s been a really fun project to work on, and I share why it’s important for me to tell stories about disability. I’d love to see more examples in the m…[Read more]

Hey everyone! Hope you all had a great weekend. For today’s Motivation Monday topic, check out my latest column here.

Often, we spend a lot of time in disability communities talking about the more frustrating conversations and interactions we have with people. It’s important that we discuss these scenarios, and especially that we educate others…[Read more]

Hey everyone, hope you’re all having a great week so far!

Check out the latest podcast episode here. I interviewed Ashley Fox from Southern California. Ashley is currently studying psychology at a community college, and she has SMA type 2. She talks about growing up with S…[Read more]

Hey everyone, happy new year! Hope you all enjoyed the holidays.

For today’s Motivation Monday topic, I wanted to talk about setting goals. I used to think new year’s resolutions were kind of cheesy, but I’ve come to appreciate this concept in recent years. Whether you do new year’s resolutions or not, I believe goal-setting is a good princ…[Read more]

Hey everyone! Hope you all are having a great week so far. Check out the latest podcast here.

In episode 48, Michael and I discuss the latest news regarding Roche and Genentech’s experimental therapy risdiplam. We also talk with our very own vlogger and forums m…[Read more]

Hey everyone! Hope you’re all having a great week so far.

Check out my latest column here. Everyone who knows me knows that I’m a lifelong movie buff. For me though, movies do a lot more than just entertain. They inspire me, and can even teach me lessons about living with SMA. Even if they’re not explicitly about disability, I can still…[Read more]

Hey everyone! Hope you all had a great weekend.

For today’s Motivation Monday topic, I wanted to talk about the hashtag #10YearChallenge. This is a popular trend on social media right now, and it’s fun. It encourages users to post a picture of themselves from 2009, next to one of them from 2019. The idea is to see how much people have…[Read more]