Kevin Schaefer

It’s tough, especially when weekend care factors into the equation. In this scenario, I doubt it was your Mom’s intention to make you feel burdensome, but I get it. Anytime my parents or friends or caregivers get tired or frustrated, I just have to remind myself that it’s not me that’s the cause of their frustration. SMA can wear anyone down, and…[Read more]

SoundCloud is a free and easy to use platform, and you’ve already got a mic. Audacity is a good program to use for recording and managing audio levels. Just watch some YouTube tutorials.

Some things you’ll need:

-A good, creative name for your show

-A regular schedule for recording, editing, and uploading

-Determining a structure for your…[Read more]

Hope it all works out Patricia! And yes, like DeAnn said, please don’t hesitate to ask if you have any questions about the injection process or anything else. We’re happy to help.

I can definitely relate to this. There were a couple caregivers I had who I became good friends with, and it’s never easy when they leave. And I’d be lying if I said I wasn’t scared about the idea of my primary caregiver of five years leaving eventually. He’ll always be family, but I know that one day he will have to move on. It’s not something I…[Read more]

Nice! Yeah it definitely helps to have places like that to go to regularly.

Good tips! I have used ponchos before, and I have one that’s soft and works great during the wintertime. It’s sort of a poncho/coat hybrid.

That part is tricky, and it kind of depends on the place. Bookstores and movie theaters are usually pretty safe for me, as I don’t have to come into direct, physical contact with people. I am going to an outdoor concert next weekend, and events like that with big crowds are definitely risky. Still, sometimes the experience is worth the risk.

Thank you! And yeah, taking those initial steps are tough, but ultimately worth it. If anyone out there is struggling with this area, I’m happy to talk.

I love going to Barnes & Noble! There’s one right by my house I go to all the time.

Great video! While I still prefer physical books, digital versions do make things significantly easier. I like reading on my phone when I’m in the car or waiting for doctor appointments, and I read a lot on my computer.