@kevin-schaefer
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Kevin Schaefer replied to the topic Have you seen CODA? in the forum Disability in Media 1 month ago
I finally watched CODA last night. I liked it ok but didn’t think it was amazing. Phenomenal cast and it’s a touching, feel-good coming-of-age comedy, but I get some criticisms from members of the deaf community. Like, there’s nothing wrong with telling a story from the perspective of a non-disabled family member, but it didn’t add up that they we…[Read more]
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Kevin Schaefer replied to the topic Dating Tips? in the forum SMA and Dating/Relationships 1 month, 1 week ago
Hey Crystal, great to hear from you!
First off, I do think virtual dates and talking/texting are good ways to start. It gives you a chance to connect with someone first. Then you can discuss ways to meet in person. I have friends and caregivers who drive me a lot when we’re hanging out.
Regarding an assistive device, I use my wheelchair tray for…[Read more]
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Kevin Schaefer replied to the topic How a Meltdown Lead to Clarity in the forum Adults With SMA 1 month, 1 week ago
Thanks, Blake! Yeah, it’s definitely cathartic to let it all out.
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Kevin Schaefer replied to the topic How a Meltdown Lead to Clarity in the forum Adults With SMA 1 month, 2 weeks ago
Thanks for sharing!
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Kevin Schaefer posted a new activity comment 2 months, 1 week ago
Hey @dbrb85, I have a Permobil and it’s great. I always have to make adjustments when I get a new chair, but these models have a long lifespan.
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Kevin Schaefer started the topic Any SMA Gamers Out There? in the forum Disability in Media 2 months, 2 weeks ago
Hey everyone!
One of our journalists is working on a story about a new video game that’s designed for young gamers with SMA. Check it out here.
Is anyone interested in talking about this? Just send an email to Hawken Miller at [email protected]. Thanks!
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Kevin Schaefer started the topic Ask an Expert Survey in the forum SMA Forums Welcome Lounge 3 months, 1 week ago
Hey everyone! Hope you’re all doing well.
SMA News Today is inviting members of the community to participate in a new survey. We are working on an initiative in which SMA experts will address a variety of topics, and we want your input! We want to know what topics you are interested in and what burning questions you’ve always wished you coul…[Read more]
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Kevin Schaefer replied to the topic Challenging Myself In Other Ways in the forum Adults With SMA 3 months, 2 weeks ago
Congrats! I know something like this would be good for me. I spend way too much on books, movies, collectibles, and eating out each month.
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Kevin Schaefer replied to the topic Finding Love in the forum Adults With SMA 3 months, 3 weeks ago
Hey Blake, I fixed it. Thanks for sharing.
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Kevin Schaefer and
Lupa F are now friends 3 months, 3 weeks ago
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Kevin Schaefer replied to the topic Hello! in the forum SMA Forums Welcome Lounge 3 months, 4 weeks ago
That’s awesome!
Yeah, so I write a column for this site, which you can read here. I also write comic/graphic novel scripts. I like sf/fantasy, horror, and comedy.
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Kevin Schaefer replied to the topic Hello! in the forum SMA Forums Welcome Lounge 4 months ago
Hey Daniela, welcome! I’m 28, type 2, and I work remotely for this site’s parent company. I’m also a writer and podcaster. Great to have you!
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Kevin Schaefer started the topic Podcast: Hiring and Managing Caregivers in the forum Flash Briefings and Podcasts 4 months ago
Hey everyone! Hope 2022 is off to a great start for you all.
Check out this podcast episode. Me, @drunge, and @smajourney51 talked in-depth about hiring and managing caregivers.
We discussed our first experiences…[Read more]
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Kevin Schaefer replied to the topic “Special” on Netflix in the forum Disability in Media 5 months, 2 weeks ago
I finally started watching this as well. It’s great! The writing is poignant, hilarious, and touching. I love how quirky the characters are, and how it tackles the nuances of living with a less visible disability. Highly recommend!
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Kevin Schaefer started the topic New Survey: Ask an Expert in the forum Raising Awareness of SMA 6 months, 1 week ago
Hey everyone! Hope you’re all doing well.
SMA News Today is inviting members of the community to participate in a new survey. We are working on an initiative in which SMA experts will address a variety of topics, and we want your input! We want to know what topics you are interested in and what burning questions you’ve always wished you could a…[Read more]
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Kevin Schaefer replied to the topic Starting the Search for New Caregivers in the forum SMA Parents and Caregivers 7 months ago
Thanks for sharing! Definitely a big transition, but it’ll work out.
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Kevin Schaefer changed their profile picture 7 months ago
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Kevin Schaefer replied to the topic Starting the Search for New Caregivers in the forum SMA Parents and Caregivers 7 months ago
Thanks for sharing Pamela! It is indeed a challenge most of us here have to face. Just gotta take it one step at a time.
And I’d love to have you on the podcast! I’ll message you in a bit.
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Kevin Schaefer started the topic Starting the Search for New Caregivers in the forum SMA Parents and Caregivers 7 months, 1 week ago
Some of you may know this, but my longtime caregiver is leaving to start a new career. I wrote a column about this recently. Obviously, this is a big transition, but I feel like I’m in a good mental state. I’ve started contacting agencies and individuals, and I sent a job ad to a CNA program in my area. I’ll of course miss Randy, but we’re…[Read more]
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Kevin Schaefer started the topic Discussing SMA Pride and Disability Language in the forum Raising Awareness of SMA 9 months, 2 weeks ago
Hey everyone! Hope you’re all doing well.
Check out my latest column here. I don’t know if you all have seen, but there are discussions and debates going on in the SMA community about what to refer to this month as. While August is traditionally referred to as SMA Awareness Month, some prefer to rebrand it as SMA Pride Month. I explain thi…[Read more]
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