@julia-ayerbe
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Júlia Ayerbe replied to the topic First dosis of Spinraza in the forum Spinraza 4 months ago
Thank you all for your words, they help me a lot. Since today I no longer feel the side effects of the injection and I am very happy and peacefull to continue on this journey. 🙂
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Júlia Ayerbe started the topic First dosis of Spinraza in the forum Spinraza 4 months, 1 week ago
Hi all, yesterday I got my first dose of Spinraza. I waited three years for this treatment, and I am very glad and excited with my first injection. Anyway, since yesterday I´ve felt very tired, and I am also a little bit anxious to feel any effect from the medication. I know many of you take Spinraza for years, do you have any advice? Thank you <3
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Júlia Ayerbe changed their profile picture 4 months, 1 week ago
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Júlia Ayerbe replied to the topic Hello! in the forum SMA Forums Welcome Lounge 5 months, 1 week ago
Hi Flavio, I´m type III, also from Brazil, but I live in Spain.
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Júlia Ayerbe replied to the topic Drinking celery juice in the forum Adults With SMA 9 months, 1 week ago
Hi Alyssa, I use to drink green juices every morning, with spinach, celery, carrots, apple. I also have constipation problems, and I think it helps, and also not eating too much gluten. Anyway, constipation is a hard issue… but I think the juices are a good ally.
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Júlia Ayerbe replied to the topic Spasms and cramps in the forum Adults With SMA 11 months, 2 weeks ago
Hi Alyssa, thank you for your reply :). I think you are right, I´ve been more carefull about my hydration and I didn´t have any spasm or cramp in the last days, thank you for the advice! Anyway, it will be nice to understand more, why these spasms os cramps are frequently in the abdomen area (sometimes happens when I am laughing, or when I make o…[Read more]
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Júlia Ayerbe started the topic Spasms and cramps in the forum Adults With SMA 11 months, 2 weeks ago
Hi everyone, have any of you experienced attacks of cramps and spasms in the summer? I usually have cramps, a lot in the abdomen area, but in the summer they intensify with a lot of spasms … I am wondering if there is something I can do, it is very unconfortable
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Júlia Ayerbe replied to the topic SMA Patients of Color? in the forum Raising Awareness of SMA 1 year ago
Hi Brianna,
There is Jillian Mercado, I don´t know if you already known her 🙂 https://www.instagram.com/jillianmercado/
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Júlia Ayerbe's profile was updated 1 year ago
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Kevin Schaefer and
Júlia Ayerbe are now friends 2 years, 6 months ago -
Adnan Hafizovic and
Júlia Ayerbe are now friends 3 years, 2 months ago -
Júlia Ayerbe replied to the topic Intoduction in the forum SMA Forums Welcome Lounge 3 years, 3 months ago
Hi Mike, very happy to hear from you! I am curious about your treatment with Spiranza, since I am SMA III too.
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Júlia Ayerbe started the topic Introduction in the forum SMA Forums Welcome Lounge 3 years, 3 months ago
<span style=”color: #777777; font-family: ‘Open Sans’; font-size: 13px;”>Hi, my name is Julia, I am Brazilian, I have 35 years old, and now I am living in Madrid, Spain, to study a Master Degree in Contemporary Art History. I work as editor of art books. I have SMA type III since I was a child, but I was dignosed wheen I was 19. I use to be very…[Read more]
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Júlia Ayerbe's profile was updated 3 years, 3 months ago
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Júlia Ayerbe became a registered member 3 years, 3 months ago
