Júlia Ayerbe

Hi, I just bough an IPhone after years using an Android. I needed a smaller an lighter device, so I bought the new SE. I was wondering if you have any accessibility tips for IPhones 😉

Hi all, I started taking Spinraza in February. Since my last injection, three weeks ago, I´ve been feeling a lumbar pain that doesn´t go away. I read that the side effects usually disappear in a week, I will talk with my doctor, but I also would like to know if any of you experienced a long period of side effects from the injection. Thanks 🙂

Hi all, yesterday I got my first dose of Spinraza. I waited three years for this treatment, and I am very glad and excited with my first injection. Anyway, since yesterday I´ve felt very tired, and I am also a little bit anxious to feel any effect from the medication. I know many of you take Spinraza for years, do you have any advice? Thank you <3

Hi everyone, have any of you experienced attacks of cramps and spasms in the summer? I usually have cramps, a lot in the abdomen area, but in the summer they intensify with a lot of spasms … I am wondering if there is something I can do, it is very unconfortable

<span style=”color: #777777; font-family: ‘Open Sans’; font-size: 13px;”>Hi, my name is Julia, I am Brazilian, I have 35 years old, and now I am living in Madrid, Spain, to study a Master Degree in Contemporary Art History. I work as editor of art books. I have SMA type III since I was a child, but I was dignosed wheen I was 19. I use to be very…[Read more]