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Julie L

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@julie-biesemeier-lino

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    Julie L replied to the topic Prescribing Risdiplam in the forum Roche and Genentech- Evrysdi (risdiplam) 2 years, 3 months ago

    Alyssa – we were just at our MDA clinic visit.  Our neurologist is trying very hard to get Risdiplam now so when it is approved, we can hit the ground running.  The adult MDA clinic hospital would not approve Spinraza so the adults here were basically out of luck.  There is a Pain Clinic facility that started administering to adults, but I have no…[Read more]

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    Kevin Schaefer and Profile picture of Julie LJulie L are now friends 2 years, 8 months ago

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    Julie L's profile was updated 2 years, 8 months ago

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    Julie L became a registered member 2 years, 8 months ago

    • Profile picture of Kevin Schaefer
      Kevin Schaefer replied 2 years, 8 months ago

      Hey Julie, welcome! Good to have you here. Please let me know if you have any questions, and feel free to introduce yourself in the welcome forum. Thanks for joining us!

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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