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  • If you do find something llet us know how it works.

  • When I read her first article about the initial health problem I was a bit dismayed. But I guess many of us have had to endure more than one diagnosis. When I was 11, I was diagnosed with stargardt’s disease, chronic kidney stone at 18 and H. pylori at 21. Each one has taken its toll, , but I guess SMA teaches us earlier on how to adapt and…[Read more]

  • It is a good thing to be small when someone has to pick you up! I do not know how Junior you mean by junior sizes, like preteen (3, 5, 7) or smaller like (10, 12, 14). But being on the petite side myself (5′ 90 lbs). I can still usually find my size in the adult stores (petite section). But they do sell the panels to make your own maternity pants.…[Read more]

  • Adnan Hafizovic and Profile picture of AngelAngel are now friends 1 year ago

  • Kevin Schaefer and Profile picture of AngelAngel are now friends 1 year ago

  • Jason Raposo and Profile picture of AngelAngel are now friends 1 year ago

  • I used to wear a waist cincher when I was in my wheelchair for long hours. Even after spinal rod fusion I still have a bit of a curve and it would help me without wearing down my stomach muscles. Honestly, it did not hurt the look of my figure either. Long story short (too late), on my side that still curved in the girdle would try to bend in and…[Read more]

  • Angel posted a new activity comment 2 years ago

    advice to my*

    • Hey Angel, your first post was great, and no you did not break any guidelines. We welcome a wide range of discussion topics here on the forums. Our only “rules” are to be respectful toward other members, not use profanity, etc. Pretty basic stuff. I don’t think you have anything to worry about. Thanks for joining us here and let us know if you h…[Read more]

  • Angel posted a new activity comment 2 years ago

    I did not break any rules right? I tried to keep it PG! Since it was advised that 15-year-old self. Are there rules? Guideline to what we can and cannot say? Or rather, what we should and should not say? Of course nothing like racism or hate speech, that is a given. But PG is the way to go right? Sorry, this is my 1st SMA group. Really my 1st MD…[Read more]

    • Angel replied 2 years ago

      advice to my*

      • Hey Angel, your first post was great, and no you did not break any guidelines. We welcome a wide range of discussion topics here on the forums. Our only “rules” are to be respectful toward other members, not use profanity, etc. Pretty basic stuff. I don’t think you have anything to worry about. Thanks for joining us here and let us know if you h…[Read more]

  • Angel's profile was updated 2 years ago

  • I am not twenty-something, I am in my late 30’s. People say I never look my age, which might be a good thing when you have a child’s disease. When I was diagnosed with SMA type I, it was something you died of, not lived with (pardon the dangling participle). So I put off ideas and relationships until my twenties because honestly I had more…[Read more]

  • Angel changed their profile picture 2 years ago

  • Angel changed their profile picture 2 years ago

  • Angel changed their profile picture 2 years ago

  • Angel joined the group Group logo of SMA PatientsSMA Patients 2 years ago

  • Angel became a registered member 2 years ago

    • Hey Angel! Welcome! I’m Ryan, one of the forum moderators. Let me know if you have any questions.

      • Angel replied 2 years ago

        I did not break any rules right? I tried to keep it PG! Since it was advised that 15-year-old self. Are there rules? Guideline to what we can and cannot say? Or rather, what we should and should not say? Of course nothing like racism or hate speech, that is a given. But PG is the way to go right? Sorry, this is my 1st SMA group. Really my 1st MD…[Read more]

        • Angel replied 2 years ago

          advice to my*

          • Hey Angel, your first post was great, and no you did not break any guidelines. We welcome a wide range of discussion topics here on the forums. Our only “rules” are to be respectful toward other members, not use profanity, etc. Pretty basic stuff. I don’t think you have anything to worry about. Thanks for joining us here and let us know if you h…[Read more]

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