I would most likely not go as far as vandalism, like scratching the car with my wheelchair by just trying to get by of course. But if it is dirty enough it might be fun to have someone write a message. “Morally Weak”

Confidence of a drag queen! In my job I often have to talk to governmental agents or lawyers or bankers about my clients. Often times represent them in very difficult situations. Be prepared. If you know what you know, then in what voice you say it, or what clothing or what position, is little on the scale of significance. Stephen Hawking had…

Read more

I know this is an older post, but here is too much info. Remember that online dating for everyone is like fire, the greatest thing ever and a very possible nightmare. You have access to people you probably would that have in every day life who have similar interests, ideas and beliefs at your no makeup on, unshaven pajama wearing fingertips…

Read more

I know this probably isn’t the popular choice, but audiobooks are my favorite. I can multi-task, listen to the speed I want, which is usually between 1.7 and 2, and give my eyes a break without losing the ability to explore new worlds and intake information. I am an auditory learner, so this works for me. But many people are visually…

Read more

Is your dad aging into Medicare? If not. I would highly suggest that you go on healthcare.gov and look at the Blue Cross Blue Shield options for your family. Because he has a life change, such as retirement or a change in jobs, you don’t have to wait for open enrollment for next year. I don’t know if that’s financially feasible, but it…

Read more

Always have the confidence of a drag queen when it comes to knowing who you are and what you need and want. We don’t always know the answers about ourselves and others, but when we find them and are certain, be confident. Humility and gratitude are not the opposite confidence, that is arrogance. People are attracted to and feel safe around…

Read more

Maybe my face is expressive enough, or have an interesting smirk, but usually I just say “I don’t really shake hands.” Usually it makes people feel like idiots for asking. However a smile and “It was great to meet you,” sets them back at ease. There may not be an immense amount of things to be grateful for as a result of Covid, but…

Read more

If you do find something llet us know how it works.

When I read her first article about the initial health problem I was a bit dismayed. But I guess many of us have had to endure more than one diagnosis. When I was 11, I was diagnosed with stargardt’s disease, chronic kidney stone at 18 and H. pylori at 21. Each one has taken its toll, , but I guess SMA teaches us earlier on how to adapt… Read more

It is a good thing to be small when someone has to pick you up! I do not know how Junior you mean by junior sizes, like preteen (3, 5, 7) or smaller like (10, 12, 14). But being on the petite side myself (5′ 90 lbs). I can still usually find my size in the adult stores (petite section). But they do sell the panels to make your own maternity… Read more

I used to wear a waist cincher when I was in my wheelchair for long hours. Even after spinal rod fusion I still have a bit of a curve and it would help me without wearing down my stomach muscles. Honestly, it did not hurt the look of my figure either. Long story short (too late), on my side that still curved in the girdle would try to bend in… Read more

I am not twenty-something, I am in my late 30’s. People say I never look my age, which might be a good thing when you have a child’s disease. When I was diagnosed with SMA type I, it was something you died of, not lived with (pardon the dangling participle). So I put off ideas and relationships until my twenties because honestly I had… Read more