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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 4 replies, has 3 voices, and was last updated by  Ryan Berhar 1 week, 3 days ago.

    • Author
      Posts
    • #20896
       Ryan Berhar 
      Keymaster

      Hey everyone, here’s Kala’s newest column. She let’s us know that she was recently diagnosed with MS, though they’re not sure what kind yet. This is definitely never news you want to get, but it sounds like she’s taking it well. Has anyone else dealt with multiple diagnoses?

      Add an MS Diagnosis to My List

    • #20898
       Angel 
      Participant

      When I read her first article about the initial health problem I was a bit dismayed. But I guess many of us have had to endure more than one diagnosis. When I was 11, I was diagnosed with stargardt’s disease, chronic kidney stone at 18 and H. pylori at 21. Each one has taken its toll, , but I guess SMA teaches us earlier on how to adapt and overcome. We all have different ways of coping and dealing. I personally pray, and I will for Kala. I know after reading some of her book, that may not be her particular method. But I have found that believing in something bigger than the frailty of our own existence can help put my suffering into perspective. Sometimes crying out to God (with a suction machine close at hand) truly does offer some peace, and occasionally healing. However, I am not above temporary fixes like music, laughter, pain relieving substances, creative endeavors, stimulating encounters and good ol’ entertainment escapism. How do the rest of you cope, find solace and comfort and/or overcome?

      • #20899
         Ryan Berhar 
        Keymaster

        I completely agree! My faith is what sustains me. Life is extremely difficult, but I believe God left me here to finish running this race. When I sort of just want it to end, that is what lifts me up.

    • #20926
       DeAnn R 
      Keymaster

      Maybe it’s just me, but I feel like when you have SMA it kind of prepares you for other challenges. Although one diagnosis is plenty, it maybe allows a person to take another diagnosis in stride or at least lessens the impact. I’m sure each diagnosis has its own implications, but like Kala implies having SMA has taught me how to adapt and accept. You gotta do what you gotta do.

      • #20931
         Ryan Berhar 
        Keymaster

        Yeah I agree. Our lives with SMA are already challenging, so we’re probably more equipped to handle additional diagnoses.

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