Lupa F

A little note, I think there’s a typo in the quote at the end? ““I see disabled people every day thinking of ideas disabled people never would have”.

Luckily(?), I’m not much of a family person so I don’t mind missing stuff, but I’ve told my family “if I show up I show up” but to never count on me being at an event because I’ve had enough times where something or other broke and there was no easy way for me to get somewhere.

As far as vans go, I just got a new one 2 years ago and the thing…[Read more]

Mike, I got the device you linked. At least for me it was pointless because you still have to get the sock around the plastic which is bigger than my foot and I couldn’t even come close to getting it on that thing. I tried another device too which had the same issue: if I can’t get it over my foot how am I supposed to get it over something bigger…[Read more]

Would you have to redo the loading doses for Spinraza since you’ve been off it a while? That might make the decision for you.

I see a good and bad reason for it.

When I was younger and could still walk a little I never really associated myself with wheelchair users. I didn’t even use a wheelchair, I used a scooter. So services like this that seemed geared directly toward wheelchair users I wouldn’t look into because I didn’t think they applied to me even though I might…[Read more]

DeAnn, didn’t you have covid already too? Reinfections still seem surprisingly rare, so between that and being vaccinated I’d say you don’t have a lot to really worry about. But it’s really up to how comfortable you feel. As the others have said, in this case, get a mask that protects you rather than a standard mask that’s more for protecting others.

Thank you for putting up links to whenever they’ve offered these packages. One of the items from an earlier package helped save me from a bad situation a couple weeks ago: I fell off my chair when transferring from my bed and I had my tv on and my phone wouldn’t recognize my voice over the tv (I live alone), but the Amazon Echo device I got from…[Read more]

I try to name them by the room or the main thing they’re next to. I only have lights set up so I’ve got “computer lamp” “bed lamp” “living room lamp”. I’ve got some others next to my bed I never use and shouldn’t have bought, so they’re named “stupid lamps”.

I’m reading the Mike Nichols biography. You can live vicariously through me while I live vicariously through him. It’s a good book, but almost tiring how many famous people he was always around.

And then it’s even more frustrating when someone finally does come to help and I try to explain what I want done. I’ll tell them “just tighten that screw right there”, and they’ll look at me and then go outside and take a tire off my van. And I’m like wtf that wasn’t even close to what I said to do.

I run into the issue with family where I get told: “Call me if you need anything!” I ask them for help with something. “I’m working, can I come some other day?” I say okay and never hear from them again. The thing I wanted help with breaks and I need it fixed immediately so I ask again. “Why didn’t you ask for help earlier?” Sighhhhhhhhhhh.

I…[Read more]

DeAnn, did you ever get new armrests? I stopped even trying to use my new chair because the ones I have are so uncomfortable.

Unless you take it regularly for something else, it’s not recommended to take Tylenol or aspirin before the shot.

Power adjustable footrest height is definitely available. I really wish I got it when I got my chair. I was told I can add it still if I want, but it’s not something insurance will cover for me. It also requires a different footplate (a single plate rather than split) which wouldn’t be as wide as the ones I have now so that might be worse.

I think Kevin here has his injections done in his neck since the usual lumbar area wasn’t possible. But I don’t know that changing injection sites would do much. How did they show the Spinraza was concentrated at your injection site? I’ve never had any tests that would show something like that. But if it did affect different muscles depending on…[Read more]

Be careful with fiber. A few years ago I tried taking some since I was having some issues in the bathroom. Over the next couple weeks I started feeling very woozy and lightheaded, especially while on the toilet. I felt like I was falling all the time. I then realized it started just after I started taking the fiber. Once I stopped, the weird head…[Read more]

I have a folding power side ramp. Even if the electronics break, you can still manually use it. The only issue with the folding ramps is they bounce around a fair bit and are pretty noisy inside. I think you can manually use an in floor ramp but it’s a bit more involved where you have to crank it out.

As for the side versus rear ramps, I’d try to…[Read more]

As someone who has only had to use a chair as I got older, I don’t have a problem with his story or feel it’s inauthentic. A wheelchair to me is a tool, it’s not part of my identity. I’d love to never have to use one again. I’ve said it before here, that I don’t think being disabled makes me who I am, it’s just something I have to deal with, and…[Read more]