@mdpratt55
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Mark Pratt replied to the topic Anyone Watch Ordinary Joe? in the forum Disability in Media 8 months, 1 week ago
Interesting show. I’d be more interested in the 10-year-old disabled actor. This one of the falls best new shows since This Is Us.
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Mark Pratt posted an update 1 year ago
I’ve seen ads for a shoe that looks easy to get on/off, supposed to be extra wide, secures with velcro, and has 3 removable memory sole insoles. It is advertised by a website called Beelucky.
beelucky.net/comfy-shoes
They are expensive, $95, and before I take the chance, has anyone had experience with this company or purchased their shoes?
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Mark Pratt replied to the topic Tips for Dealing with Pain in the forum Adults With SMA 1 year, 1 month ago
Vicodin. If one doesn’t help, take two.
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Mark Pratt replied to the topic Finally Approved for Evrysdi! in the forum Roche and Genentech- Evrysdi (risdiplam) 1 year, 2 months ago
I’ve been on Evrysdi for three months and have had no side effects. My issue is that every bottle has been 1-2 cc short of the full twelve doses. We measure the dose carefully, my wife is an RN so she know how to fill a syringe. I contacted my PAC and was told to always take a full dose and don’t mix doses from two bottles even if they are th…[Read more]
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Mark Pratt changed their profile picture 1 year, 2 months ago
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Mark Pratt replied to the topic Has Anyone Had Their Second Vaccine Shot? in the forum Coronavirus (COVID-19) and SMA 1 year, 2 months ago
Second Pfizer shot weeks ago, no problems.
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Mark Pratt replied to the topic Evrysdi Trade-offs in the forum Roche and Genentech- Evrysdi (risdiplam) 1 year, 4 months ago
It’s like drinking 6.6ml of strawberry flavored water, or about one and one-third teaspoon. I too was a little anxious prior to that first dose, but there is no aftertaste and you chase it with a swallow of water. About as easy as it gets when taking medication. I’m on my third week and have had no adverse symptoms like diarrhea or he…[Read more]
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Mark Pratt replied to the topic Adaptive Sports in the forum Adults With SMA 1 year, 5 months ago
Have you looked at power soccer? It is the only sport specifically for persons in power wheelchairs, though you don’t need to be a power chair user to play. It is a truly competitive sport played locally, nationally, and internationally. Better yet, it is a great way to meet people with a variety of abilities and their families. You get to see…[Read more]
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Mark Pratt became a registered member 1 year, 6 months ago