[sabrina]

That was great advise. I’m actually looking for some advice and awaiting to be accepted in the caregiver group but I just thought i reach out. I am a mother taking care of my 19 month daughter with SMA TYPE 2. She currently takes spinraza doses every 4 months and her neurologist want us to try the zolgensma before she turns 2 years old. I am truly blessed to say my child is doing very well. She start receiving spinraza at 9 months and she has made wonderful progress she sits up on her own she crawls on her own. She even can stand up on her own if she has something to hold on to. So now I have a decision to make about the zolgensma. I dont know if we should just be patient with spinraza because she is progressing so well or get the zolgensma and see what happen it’s really mind boggling and I just want to make the best decision for her.