micaela-macdougall
Forum Replies Created
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Those answers are very helpful! Yvette and Alyssa, do you have a limit on the number of hours you can hire PCAs for?
Yvette, unfortunately Maryland is one of the few states where parents can’t get compensation for caregiving.
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Hi Lupa – I would guess that it’s a little more complicated than that. If I remember correctly, non-adherence was defined as more than two weeks delay in getting the next dose in Spinraza – so depending on your schedule, it would be possible to be non-adherent, but still receive and pay for the exact same number of Spinraza doses in a year as someone who was adherent. Given that the window for non-adherence is so small, I don’t think you can make an equivalence between the cost of a Spinraza dose and the annual cost of non-adherence. If someone was so non-adherent that they actually missed (not just delayed) one or more doses, the numbers above would have to be recalculated, and I would guess that the cost of that level of non-adherence would be significantly larger. So, no, I don’t think this study is enough for insurance to start reevaluating the cost/benefit analysis.
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And if you don’t mind me asking, do you still have family helping you in addition to your PCAs through Medicaid? If yes, do you know whether your hours cap would increase if you were relying solely on Medicaid PCAs and didn’t have family to help?
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Thanks for the advice! I know I’m going to have to contact them eventually, I was just wondering if anyone here had a ballpark number I could use for now before going through the actual application process. But you’re right, there’s probably so much variation that it’s difficult to say.
