Biography

Name

Desiree

Last Name

Sheehy

Nickname

Dez

Year of Birth

1999

Gender

Female

Location

Indialantic, FL

Relationship

Patient

Short Bio

Greetings reader. I am a 24 year old artist that has been enjoying the consistent craft for a bit over four years. I always loved creating and drawing when I was younger, but I physically didn’t have the stamina due to SMA. Spinraza, gave me the ability to do art. I never thought I’d call myself an artist, but here we are.

I love painting anything fantasy, my dragon Gweneth is a big part of my flaming inspiration if I’m unsure what to create. Depending on my mood, my art can change from realistic to abstract or fantasy to reality. Whatever takes my fancy, or if someone suggests an idea, I’m a free flowing Libra with a deep passion for physics.
​​​​​​​Stephen Hawking is my idol.

SMA Type

Type II

How did you hear about us?

SMA News Website

How long have you or the person that you are caring for had SMA?

24 years

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