Ryan Berhar

Intriguing point. I think “vulnerable” is an interesting word choice. Being susceptible to physical or emotional attack or harm (I looked it up to be sure lol) doesn’t seem like something we should strive for. I guess since that’s something we with SMA inevitably have to deal with, it’s best to accept it and make the best of it. Is that kinda whe…[Read more]

Yes, and it seems everyone is on board with it, which is huge progress. Hopefully everything settles down around here and we can move forward with the plan.

it definitely helps.

About the same as you. I had some fireball on New Year’s Eve. That’s some potent stuff lol.

He’s five I do believe. We get together every few months. They’re good people.

Thanks!

The part where she says she envies the ability to just up and go somewhere is very relatable. It’s utterly exhausting having to plan every little thing out. Sometimes it’s like I have to move mountains just to go to Starbucks. Also how this has resulted in her becoming more introverted. I get that too.

Nothing necessarily stood out in particular, but again, it’s just nice to read those reminders. What strikes me about Shane is his willingness to put himself out there I guess you could say. With regard to girls or otherwise, he succeeds by going for it.

It’s always nice to be reminded that we can, you know, do certain things in spite of our disability. Haha

Thanks!

She’s still so young. I hope she keeps that hope alive.

I don’t necessarily have any SMA related advice, but I think it’s super important to always look at a portfolio of the artist you’re considering. Sounds like you’re prepared in that regard though. I have two tattoos, a cross with clouds and rays around it (essentially one big one). For whatever reason, the clouds hurt significantly worse than th…[Read more]

One healthier snack I love is cheese and grapes. I thought it was a weird combination at first, but it’s one of my favorites now.

The things I learn on the SMA forum. Haha

As I think I mentioned here before, I’m going to be the best man in my cousin’s wedding this summer. I’ve only been to two weddings that I can remember, and they were both ages ago, so I don’t have much experience. I’m really excited though. I haven’t heard anything about a bachelor party, but it’ll probably be some redneck activity like branding cows haha

DeAnn, that’s something I often think about—how everyone does everything slightly differently. It’s not necessarily even a bad thing, it just takes time to get used to all the subtle differences between caregivers. Even my family, whose been taking care of me for almost 23 years, have to be reminded of certain things. It’s just interesting.

Yes, same here. If I get up really early it throws me off for a couple days.