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Ryan Berhar posted a new activity comment 3 years, 3 months ago
Hey Victoria, I’m Ryan, another moderator. Thanks for joining us.
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Ryan Berhar replied to the topic The Importance of Vulnerability in the forum Adults With SMA 3 years, 3 months ago
Intriguing point. I think “vulnerable” is an interesting word choice. Being susceptible to physical or emotional attack or harm (I looked it up to be sure lol) doesn’t seem like something we should strive for. I guess since that’s something we with SMA inevitably have to deal with, it’s best to accept it and make the best of it. Is that kinda whe…[Read more]
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Ryan Berhar replied to the topic Messed Up Schedule in the forum Adults With SMA 3 years, 3 months ago
Yes, and it seems everyone is on board with it, which is huge progress. Hopefully everything settles down around here and we can move forward with the plan.
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Ryan Berhar started the topic Messed Up Schedule in the forum Adults With SMA 3 years, 3 months ago
As some of you know, I’m usually at my grandma’s house three nights a week. Due to some family issues, my two very young cousins have also been there for a while, and one caught the flu. I can’t be at my Gma’s for the time being. These complications have totally messed up not just my schedule, but everyone else’s for that matter. It’s times like…[Read more]
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Ryan Berhar replied to the topic Maintaining a Social Life When You Have SMA Requires Creativity in the forum Adults With SMA 3 years, 3 months ago
it definitely helps.
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Ryan Berhar replied to the topic Drinking When You Have SMA in the forum Adults With SMA 3 years, 3 months ago
About the same as you. I had some fireball on New Year’s Eve. That’s some potent stuff lol.
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Ryan Berhar replied to the topic Interview Column #3 in the forum Adults With SMA 3 years, 3 months ago
He’s five I do believe. We get together every few months. They’re good people.
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Ryan Berhar replied to the topic Interview Column #3 in the forum Adults With SMA 3 years, 3 months ago
Thanks!
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Ryan Berhar replied to the topic Maintaining a Social Life When You Have SMA Requires Creativity in the forum Adults With SMA 3 years, 3 months ago
The part where she says she envies the ability to just up and go somewhere is very relatable. It’s utterly exhausting having to plan every little thing out. Sometimes it’s like I have to move mountains just to go to Starbucks. Also how this has resulted in her becoming more introverted. I get that too.
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Ryan Berhar replied to the topic Book Club: “Laughing At My Nightmare” by Shane Burcaw in the forum Disability in Media 3 years, 3 months ago
Nothing necessarily stood out in particular, but again, it’s just nice to read those reminders. What strikes me about Shane is his willingness to put himself out there I guess you could say. With regard to girls or otherwise, he succeeds by going for it.
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Ryan Berhar started the topic Interview Column #3 in the forum Adults With SMA 3 years, 3 months ago
Hey everyone! Here’s a link to my newest column. The third in a series.
https://smanewstoday.com/2019/01/31/perspective-from-sma-father-series/?amp
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Ryan Berhar replied to the topic Book Club: “Laughing At My Nightmare” by Shane Burcaw in the forum Disability in Media 3 years, 3 months ago
It’s always nice to be reminded that we can, you know, do certain things in spite of our disability. Haha
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Ryan Berhar replied to the topic “Ryan’s Robotics” Episode 1: Introduction in the forum The SMA News Today YouTube Channel 3 years, 3 months ago
Thanks!
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Ryan Berhar replied to the topic Family Photo Album Sparks Memories of SMA Challenges in the forum SMA Parents and Caregivers 3 years, 3 months ago
She’s still so young. I hope she keeps that hope alive.
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Ryan Berhar replied to the topic Tattoo Shop Update in the forum Adults With SMA 3 years, 3 months ago
I don’t necessarily have any SMA related advice, but I think it’s super important to always look at a portfolio of the artist you’re considering. Sounds like you’re prepared in that regard though. I have two tattoos, a cross with clouds and rays around it (essentially one big one). For whatever reason, the clouds hurt significantly worse than th…[Read more]
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Ryan Berhar replied to the topic Eating Healthier Snacks in the forum Adults With SMA 3 years, 3 months ago
One healthier snack I love is cheese and grapes. I thought it was a weird combination at first, but it’s one of my favorites now.
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Ryan Berhar replied to the topic Weddings and Bachelor/Bachelorette Parties in the forum Adults With SMA 3 years, 3 months ago
The things I learn on the SMA forum. Haha
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Ryan Berhar replied to the topic Weddings and Bachelor/Bachelorette Parties in the forum Adults With SMA 3 years, 3 months ago
As I think I mentioned here before, I’m going to be the best man in my cousin’s wedding this summer. I’ve only been to two weddings that I can remember, and they were both ages ago, so I don’t have much experience. I’m really excited though. I haven’t heard anything about a bachelor party, but it’ll probably be some redneck activity like branding cows haha
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Ryan Berhar replied to the topic Training a New Caregiver When You Have SMA in the forum Adults With SMA 3 years, 3 months ago
DeAnn, that’s something I often think about—how everyone does everything slightly differently. It’s not necessarily even a bad thing, it just takes time to get used to all the subtle differences between caregivers. Even my family, whose been taking care of me for almost 23 years, have to be reminded of certain things. It’s just interesting.
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Ryan Berhar replied to the topic Does Getting Up Early Help Your Mental and Physical Health? in the forum Adults With SMA 3 years, 3 months ago
Yes, same here. If I get up really early it throws me off for a couple days.
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