Hey everyone, and happy Halloween! I wanted to let you know that today is my last day as a forum moderator. I’ve enjoyed getting to know you all, and I hope I’ve provided valuable information. But the time has come for me to make a change. I might check in once in a while, but I won’t be very active anymore. I will l leave you with this. Livin…[Read more]
Hey everyone! Happy Halloween to those who celebrate it!
Before you all go to your costume parties, check out my latest video here. In this episode of Ryan’s Robotics, I show you all how I use my JACO robotic arm to put on my hat and sunglasses. It’s a simple task, but it’s little things like this that make my…[Read more]
That’s a good point. There are people who genuinely just need to vent and receive support, and being met with something like “I’m worse off than you and managed to do X Y and Z”, just pours gas on the fire.
Hey everyone, here’s Kala’s newest column. She points out how unproductive it is to compare the severity of our disabilities, yet we do it quite often. Even beyond disabilities, it seems to me that it’s human nature to compare ourselves to others. Especially for those of us with disabilities, it’s a great way to feel discontent with our liv…[Read more]
This is something I’ve thought about. I have had some friends or family who have “left” in a geographical sense, but they didn’t abandon me personally. Life will inevitably force people down different paths, but it’s still possible to stay connected these days.
I have to take stomach issues very seriously, as I can get metabolic acidosis, which has nearly killed me on at least a couple occasions. I don’t think that’s the case with you, but I would still be careful
Hey everyone, here’s Michael’s newest column. He writes about teaching his kids what a budget is. I don’t have kids, but I think it’s important for parents to teach their children the value of money. I think an allowance is a good method, whether the kid has SMA or not. What takeaways or questions do you have?…[Read more]
Hey Crystal, I’m so sorry this happened. As the others have said, I think it’s imperative that you have a way to call for help. At my house, I have a baby monitor so my mom can hear me. I call it a man monitor haha.
Hey everyone, here’s Kala’s newest column. This one is a bit more lighthearted. She talks about why fall is her favorite season. I wrote a column last year saying the same thing, although for different reasons. She’s a fan of Halloween as well as the weather. What’s your favorite season?
Dennis mentioned down vests which are great because they don’t restrict movement as much. I also have a Patagonia coat which I believe is down. I always struggled with coats , because they restricted me too much, but this one works.
Hey everyone, here’s Michael’s newest column. He recently received positive reports on his kids during parent-teacher conferences. It’s great to hear that Ella is doing well both academically and socially. He has written about her hobbies of singing and songwriting before, and I think that has probably helped her in life overall. What are yo…[Read more]
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