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Ryan Berhar replied to the topic JACO Appeal in the forum SMA Assistive Technology/Equipment 12 months ago
Hey Rachel, Lauren Bakken is Kinova’s full time family advocate and she works on appeals, including help with drafting the appeal letter. Contact her at [email protected]. She should be able to help.
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Ryan Berhar replied to the topic Goodbye in the forum Adults With SMA 1 year, 2 months ago
Thanks Alyssa. You’ll do fantastic
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Ryan Berhar replied to the topic Goodbye in the forum Adults With SMA 1 year, 2 months ago
Thanks man
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Ryan Berhar replied to the topic Goodbye in the forum Adults With SMA 1 year, 2 months ago
Thank you all very much. I’m glad to hear that my contributions mattered.
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Ryan Berhar started the topic Goodbye in the forum Adults With SMA 1 year, 2 months ago
Hey everyone, and happy Halloween! I wanted to let you know that today is my last day as a forum moderator. I’ve enjoyed getting to know you all, and I hope I’ve provided valuable information. But the time has come for me to make a change. I might check in once in a while, but I won’t be very active anymore. I will l leave you with this. Livin…[Read more]
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Ryan Berhar started the topic Using JACO To Put On My Hat and Sunglasses in the forum The SMA News Today YouTube Channel 1 year, 2 months ago
Hey everyone! Happy Halloween to those who celebrate it!
Before you all go to your costume parties, check out my latest video here. In this episode of Ryan’s Robotics, I show you all how I use my JACO robotic arm to put on my hat and sunglasses. It’s a simple task, but it’s little things like this that make my…[Read more]
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Ryan Berhar replied to the topic Columnist Writes About Overcoming Obstacles to Enjoy Visiting a Pumpkin Patch in the forum Raising Awareness of SMA 1 year, 2 months ago
Driving on rough terrain like gravel is always a challenge, but everything is that much tougher in the cold.
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Ryan Berhar replied to the topic Columnist Writes About Comparing The Severity of Disabilities in the forum Adults With SMA 1 year, 2 months ago
That’s a good point. There are people who genuinely just need to vent and receive support, and being met with something like “I’m worse off than you and managed to do X Y and Z”, just pours gas on the fire.
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Ryan Berhar started the topic Columnist Writes About Comparing The Severity of Disabilities in the forum Adults With SMA 1 year, 2 months ago
Hey everyone, here’s Kala’s newest column. She points out how unproductive it is to compare the severity of our disabilities, yet we do it quite often. Even beyond disabilities, it seems to me that it’s human nature to compare ourselves to others. Especially for those of us with disabilities, it’s a great way to feel discontent with our liv…[Read more]
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Ryan Berhar replied to the topic Columnist Reflects on the People Who Stay in the forum Adults With SMA 1 year, 2 months ago
This is something I’ve thought about. I have had some friends or family who have “left” in a geographical sense, but they didn’t abandon me personally. Life will inevitably force people down different paths, but it’s still possible to stay connected these days.
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Ryan Berhar replied to the topic Embracing Halloween in the forum Adults With SMA 1 year, 2 months ago
I quit doing anything for Halloween when I was probably ten, mostly because it’s just extremely cold, but I never cared much about it anyway. I don’t really have any stories lol.
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Ryan Berhar replied to the topic Stomach Issues/When to See a Doctor in the forum Diagnosis Information and General Questions 1 year, 2 months ago
I have to take stomach issues very seriously, as I can get metabolic acidosis, which has nearly killed me on at least a couple occasions. I don’t think that’s the case with you, but I would still be careful
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Ryan Berhar started the topic Columnist Writes About Teaching His Kids About Budgeting in the forum SMA Parents and Caregivers 1 year, 2 months ago
Hey everyone, here’s Michael’s newest column. He writes about teaching his kids what a budget is. I don’t have kids, but I think it’s important for parents to teach their children the value of money. I think an allowance is a good method, whether the kid has SMA or not. What takeaways or questions do you have?…[Read more]
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Ryan Berhar replied to the topic I'm Kinda Scared in the forum Adults With SMA 1 year, 2 months ago
Hey Crystal, I’m so sorry this happened. As the others have said, I think it’s imperative that you have a way to call for help. At my house, I have a baby monitor so my mom can hear me. I call it a man monitor haha.
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Ryan Berhar replied to the topic Public Transportation Concerns in the forum Adults With SMA 1 year, 2 months ago
That’s pretty bad. I don’t like public transportation for many reasons, but sometimes there’s no better option.
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Ryan Berhar replied to the topic Columnist Writes About Her Love of Fall in the forum Adults With SMA 1 year, 2 months ago
I love the hot weather. It’s just that during summer I’m bored out of my mind. Fall for me is a good combination of having more to do, and it’s still not freezing cold.
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Ryan Berhar started the topic Columnist Writes About Her Love of Fall in the forum Adults With SMA 1 year, 2 months ago
Hey everyone, here’s Kala’s newest column. This one is a bit more lighthearted. She talks about why fall is her favorite season. I wrote a column last year saying the same thing, although for different reasons. She’s a fan of Halloween as well as the weather. What’s your favorite season?
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Ryan Berhar replied to the topic Columnist Writes About Her Family's 'Sick Rules' in the forum Adults With SMA 1 year, 2 months ago
Yeah, we take great precautions to keep me from getting sick, but sometimes they aren’t an option. You gotta do what you gotta do.
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Ryan Berhar replied to the topic Looking for PCA Advice in the forum Adults With SMA 1 year, 2 months ago
I would probably just tell her that you really appreciate her service and want to keep her, but that going forward you require a bit more consistency. I don’t see anything wrong with that.
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Ryan Berhar replied to the topic Winter Clothing Advice? in the forum Adults With SMA 1 year, 2 months ago
Dennis mentioned down vests which are great because they don’t restrict movement as much. I also have a Patagonia coat which I believe is down. I always struggled with coats , because they restricted me too much, but this one works.
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