@ryan-berhar
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Ryan Berhar replied to the topic Looking Like a Burden in the forum Adults With SMA 13 hours, 39 minutes ago
Me too. I’ve thought that for a long time.
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Ryan Berhar replied to the topic Welcome, New Members in the forum SMA Forums Welcome Lounge 1 day, 12 hours ago
Hey Andres, welcome! I’m Ryan, one of the forum moderators. Please let me know if you have any questions. Thanks for joining us!
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Ryan Berhar started the topic Columnist Writes About His Daughter’s Hobby of Songwriting in the forum SMA Parents and Caregivers 1 day, 12 hours ago
Hey everyone, here’s Michael’s newest column. He has talked about his daughter Ella’s singing hobby before, and she has now started songwriting, too. While it’s important for any kid, I think it’s even more important for kids with SMA to find an extra-curricular activity to excel at. For me, it was, and still is, chess. I can’t compete at a…[Read more]
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Ryan Berhar replied to the topic Looking Like a Burden in the forum Adults With SMA 2 days, 11 hours ago
That’s just one of the sucky aspects of living with SMA. Relying on others for everything is the worst. I’m sure your sister understands, though.
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Ryan Berhar replied to the topic Starting a Sports Podcast in the forum Adults With SMA 2 days, 12 hours ago
Thank you!
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Ryan Berhar posted a new activity comment 3 days, 13 hours ago
Hey Brenda, welcome! I’m Ryan, one of the other forum moderators. Please let me know if you have any questions. Thanks for joining us!
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Ryan Berhar started the topic Starting a Sports Podcast in the forum Adults With SMA 3 days, 13 hours ago
My friend and I are working on starting a sports podcast. He and I have the most interesting debates, so I think it could be a great show. Who here has started a podcast? What tips do you have?
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Ryan Berhar replied to the topic Columnist Writes About Grieving a Caregiver in the forum Adults With SMA 4 days, 10 hours ago
It’s not quite the same, but I had many different nurses when I was in school. Whether you’re close to them or not so much, it’s an enormous change that’s tough to deal with either way.
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Ryan Berhar started the topic Columnist Writes About Finding Support In An Unexpected Way in the forum Adults With SMA 1 week, 1 day ago
Hey everyone, here’s Helen’s newest column. This is a great story. She talks about how a former student who had SMA helped her later once her son was diagnosed.
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Ryan Berhar posted a new activity comment 1 week, 2 days ago
Hey Claire, welcome. I’m Ryan, one of the forum moderators. Please let me know if you have any questions. Thanks for joining us.
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Ryan Berhar replied to the topic Protecting Your Wheelchair From The Rain in the forum SMA Assistive Technology/Equipment 1 week, 2 days ago
Yeah, rain isn’t a big issue for me, as my hometown doesn’t get much rain. But I was curious anyway.
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Ryan Berhar started the topic Protecting Your Wheelchair From The Rain in the forum SMA Assistive Technology/Equipment 1 week, 3 days ago
I was in Eugene for the Ducks game on Saturday, and it was raining ever so slightly at the beginning of the game. Thankfully, it stopped, but I actually got a poncho just in case. I don’t know how well it would have worked, but worth a shot. Have you used a poncho? Was it successful?
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Ryan Berhar replied to the topic Columnist Reflects on Her Love for Football in the forum Adults With SMA 1 week, 3 days ago
There are tradeoffs with each season.
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Ryan Berhar replied to the topic Columnist Writes About How Physical Barriers Can Unfold in the Most Mundane of Situations in the forum Adults With SMA 1 week, 4 days ago
The little things are often the most frustrating. Like i know I can’t run up a flight of stairs, but that’s easy to accept. It’s things that I can almost do, but not quite, like reading a book, that are the most frustrating.
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Ryan Berhar replied to the topic Service Dog Fraud in the forum Adults With SMA 1 week, 4 days ago
Coincidentally, yesterday, a family member of mine said she’s going to try to make her dog an emotional support animal. I’ve always considered the whole “emotional support” stuff as pretty much nonsense. I’m not sure what the laws are, but it seems like exploiting a loophole. It’s not something I support, but I don’t get too hung up on it either.
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Ryan Berhar replied to the topic Columnist Reflects on Her Love for Football in the forum Adults With SMA 1 week, 4 days ago
Most people here probably know this, but I love football as well. It’s honestly my favorite thing in the universe. I deal with so much every day, and football is the one thing that totally takes away all my hardships just for a short time.
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Ryan Berhar posted a new activity comment 2 weeks, 4 days ago
Hey Christopher, welcome! I’m Ryan, one of the other forum moderators. Please let me know if you have any questions. Thanks for joining us!
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Ryan Berhar replied to the topic Double Standard in Airline Travel in the forum Adults With SMA 3 weeks ago
It’s so ridiculous. Thank you for bringing more attention to it!
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Ryan Berhar replied to the topic Labor Day Plans? in the forum Adults With SMA 3 weeks ago
Football, football, and football
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Ryan Berhar started the topic Columnist Writes About Overcoming Analysis Paralysis in the forum Adults With SMA 3 weeks, 1 day ago
Hey everyone, here’s my newest column. I talk about my recent case of self-diagnosed analysis paralysis. I was basically getting overwhelmed by the enormity of all my challenges. It’s not technically a series, but I plan to expand on the idea later. Have you dealt with something sim…[Read more]
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