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Tammy

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@tny9981

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    Tammy replied to the topic Summer Must Haves in the forum SMA Assistive Technology/Equipment 1 week, 6 days ago

    I have the same method unfortunately LOL. Wish there was a better way than ripping all of my clothes at some point but nobody seems to be able to do it any other way. I have to have them yank on my waistbands in order to get my hips scooted back all the way because everybody for some reason likes to put me on the edge of my seat in a lying down…[Read more]

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    Tammy changed their profile picture 3 weeks, 1 day ago

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    Tammy changed their profile picture 1 month ago

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    Tammy replied to the topic How do you handle infantilization? in the forum Adults ​With​ ​SMA 1 month, 2 weeks ago

    LMAO yes it’s like I said no dammit! LOL. But yeah sometimes it can be embarrassing especially if I’m with a group of friends. It just makes me feel kind of low. And I don’t like my friends looking at me that way, even though I know they don’t. But I’m like please, sitting in a wheelchair doesn’t mean I need to cut in front of everyone. I’m really…[Read more]

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    Tammy replied to the topic How do you handle infantilization? in the forum Adults ​With​ ​SMA 1 month, 2 weeks ago

    Luckily I haven’t had this happen to me as an adult. But what does kind of annoy me even though it’s meant with good intentions, is people letting me cut in line in front of them. like oh you go ahead. As if like the “poor you” kind of sentiment. I usually always respond with no that’s okay you can go.

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    Tammy replied to the topic Irritated Pits in the forum Adults ​With​ ​SMA 1 month, 3 weeks ago

    Hahaha such little things that are such a nuisance to all of us. I thought I was the only one LMAO. I don’t get irritated in the literal sense on my skin. but I do get annoyed when they put it all over the place like a wildebeest. I had to tell 1 to stop smearing it halfway up my arm after she’s done applying it LOL. Never thought I’d have to give…[Read more]

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    Tammy replied to the topic Apitegromab in the forum SMA Treatments: Questions, Stories, etc. 1 month, 3 weeks ago

    Same

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    Tammy replied to the topic Where are you from? in the forum Adults ​With​ ​SMA 1 month, 3 weeks ago

    New Jersey

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    Tammy replied to the topic Sticky Situation in the forum Adults ​With​ ​SMA 2 months, 2 weeks ago

    1. Zip ties rule, i use them all over the chair
    2. I use command strips for some switches as well. You can even cut them if they are too big

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    Tammy replied to the topic Should've Followed My Instincts in the forum Adults ​With​ ​SMA 2 months, 2 weeks ago

    I’ve gotten to the point where I just let my mouth fly lol. And I make that clear to them now LOL. I have even said to some of their faces… You can feel free to do things however you like in your own home but in my home we will do things the way I like since it’s my stuff and my care. I’ve also even pointed out to them, I’m sure you wouldn’t…[Read more]

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    Tammy replied to the topic Items That Foster More Independence in the forum SMA Assistive Technology/Equipment 2 months, 4 weeks ago

    I use those long wooden s’mores sticks to hit the light switches that aren’t attached to the Amazon device LOL

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    Tammy replied to the topic I’m Back! Well, Sort Of… Here’s the Scoop. in the forum Adults ​With​ ​SMA 3 months ago

    So sorry to hear this! Hope you get better ASAP! Hang in there

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    Tammy replied to the topic Switch Access / Switch Control in the forum SMA Assistive Technology/Equipment 3 months, 1 week ago

    I use a stylus pen. And at times when my hands are not able to get to it or I’m tired, I will use the pen with my mouth

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    Tammy replied to the topic Finding Love in the forum Adults ​With​ ​SMA 3 months, 2 weeks ago

    Hahaha, thanks. Although turning 41 in just a matter of weeks doesn’t exactly feel young LMAO. I feel like I just have no patience and I get irritated easily. I’m ridiculously picky

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    Tammy replied to the topic Finding Love in the forum Adults ​With​ ​SMA 3 months, 3 weeks ago

    I’ve completely thrown in the towel on that lol. Seems like too much of an effort

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    Tammy replied to the topic BCAA's in the forum Adults ​With​ ​SMA 3 months, 3 weeks ago

    Also… Did you start with the loading dose phase and then the maintenance dose? Or did you just take the same dose every day?

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    Tammy replied to the topic BCAA's in the forum Adults ​With​ ​SMA 3 months, 3 weeks ago

    That’s great! Are there specific brands that you recommend?

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    Tammy replied to the topic Novavax vaccine in the forum Coronavirus (COVID-19) and SMA 3 months, 3 weeks ago

    I’ve never even heard of it

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    Tammy started the topic BCAA's in the forum Adults ​With​ ​SMA 3 months, 3 weeks ago

    Out of curiosity has anyone ever tried taking branched chain amino acid supplements?

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    Tammy replied to the topic Alfamino Formula (AA Diet) in the forum Adults ​With​ ​SMA 4 months, 3 weeks ago

    A little bit slow on the response but, I would not recommend (especially for women) everyday consumption of anything soy based. My PCP about soy based supplements & she said not a good idea. Supposedly soy contains estrogen like compounds called isoflavones. And some findings suggested that these compounds could promote the growth of some cancer…[Read more]

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