@uniquestarr2004gmail-com
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Pamela Muhammad replied to the topic How do you sit in your wheelchair? in the forum SMA Assistive Technology/Equipment 1 month, 1 week ago
I use a regular seatbelt that came with the wheelchair, and I only use it when I ride the bus. And also, there’s a padded siding on my right ribs that gives me some support.
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Pamela Muhammad posted an update 1 month, 1 week ago
I’m looking for a remote or a home-based job. What kind of job do you have, how many hours per week do you work, and do you use any adaptable accessible devices to aid your work?
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Pamela Muhammad replied to the topic Support Systems in the forum Adults With SMA 1 month, 1 week ago
It’s very difficult these days getting adequate care as I get older especially since covid’s epidemic 2022. There is a shortage of caregivers because they’re getting more by the government free services or other jobs are paying higher salaries. Family members are taking care of their immediately family members, friends are far and between, so…[Read more]
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Pamela Muhammad replied to the topic Starting the Search for New Caregivers in the forum SMA Parents and Caregivers 8 months, 1 week ago
Good morning Kevin,
I know that life chances for everyone ,however it doesn’t make it easier to accept some random strangers into come to my live as caregivers to help us to do or in most cases to complete do my daily hygiene , cooking and cleaning …etc., I literally hate it when my good , caring caregivers have to leave for whatever reason,…[Read more]
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Pamela Muhammad replied to the topic The Dating Game in the forum SMA and Dating/Relationships 9 months ago
Hi I agree for that matter the media /or society in general wants to stereotype all of us in one category of not being inhumane! It’s good hear to successfully relationships stories like yours. My life is so busy that I don’t focus on having a romantic relationship though I’m human and I love men (smiles) I am not going to worry about it, if it…[Read more]
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Pamela Muhammad replied to the topic Choosing Rest in the forum Adults With SMA 9 months, 2 weeks ago
<p>Hi Brianna, <br />Yes, I make myself take breaks because I work so hard to do so much personal wise and business. However, I am learning to enjoy a movie, music and something to bring me some happiness. </p>
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Pamela Muhammad replied to the topic Looking for Evrysdi Updates in the forum Roche and Genentech- Evrysdi (risdiplam) 1 year, 7 months ago
I am interested in wanting to know more about it,but unfortunately the M D A office isn’t answering calls nor my doctor.
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Pamela Muhammad replied to the topic Michael Discusses Possible Combination Therapy for SMA in the forum The SMA News Today YouTube Channel 1 year, 8 months ago
I am hopeful always because that is my nature. But I don’t want anything that is painful or has too many dangerous side effects, if th that’s the case I would rather just deal with SMA. But I am open minded. Thank you for sharing.
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Pamela Muhammad replied to the topic Columnist Writes About JACO Denial in the forum SMA Assistive Technology/Equipment 1 year, 8 months ago
I hate the term “medical unnecessarily” just because it’s not medical doesn’t mean it’s not greatly needed.
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Pamela Muhammad replied to the topic Do You Use Consumer-Directed Community Supports (CDCS)? in the forum Adults With SMA 1 year, 8 months ago
Good morning. I agree with you that being disabled and having to depend on others is quite a task itself every day of my life. I use an agency and the benefit of that is that they I have more of the responsibility of hiring and firing qualified caregivers although most of the time they aren’t qualified at all. It’s absolutely ridiculous of some…[Read more]
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Pamela Muhammad replied to the topic Favorite Ways to Unwind in the forum Adults With SMA 1 year, 8 months ago
Hi Alyssa! I enjoy singing ,listening to music, writing , reading , watching my favorite youtube channels of fashion, singing, arts, cooking, hair & beauty etc and I also enjoy being alone with my thoughts until I need assistance…smile.
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Pamela Muhammad replied to the topic Happy Valentine's Day! in the forum SMA and Dating/Relationships 1 year, 8 months ago
I am late responding , but thank you guys for sharing! I am interested in getting married one day ,but I am in no rush because I am learning to love myself first and staying positive. Thank you all for sharing great experiences.
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Pamela Muhammad replied to the topic Starting a small business in the forum Adults With SMA 1 year, 8 months ago
Hi that’s awesome and congratulates! I would to a start a business can you give any tips or experiences, was it very difficult to start your businesses ?
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Pamela Muhammad replied to the topic Amazon Prime Day Finds in the forum SMA Assistive Technology/Equipment 1 year, 8 months ago
Hi I love Amazon and of course I was excited about prime day. I am interested in buying two items the ‘hand warmer and Alexa show ‘ Do anyone have these two items ? If so please share your experiences with them. Thank you!
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Pamela Muhammad replied to the topic Wheelchair Scheduled for Delivery! in the forum SMA Assistive Technology/Equipment 1 year, 8 months ago
<p style=”text-align: center;”>Hi DeAnn congratulations on getting your chair so quickly. It usually has taken me a couple of months to get my wheelchair. And although I enjoy getting a new chair, it can be very frustrating getting used to sitting in it. But hopefully that will Not be your case LOL</p>
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Pamela Muhammad replied to the topic Wheelchair Scheduled for Delivery! in the forum SMA Assistive Technology/Equipment 1 year, 8 months ago
Hi DeAnn congratulations on getting your chair so quickly. It usually has taken me a couple of months to get my wheelchair. And although I enjoy getting a new chair, it can be very frustrating getting used to sit in it. But hopefully that will be your case LOL
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Pamela Muhammad replied to the topic October is National Disability Employment Awareness Month (NDEAM) in the forum Adults With SMA 1 year, 8 months ago
<p style=”text-align: left;”>Hi everyone! Thank you all for sharing your experiences of employment Etc. I have been trying to get employed for years ,but unfortunately I haven’t officially gotten employed as of yet, however that hasn’t stopped me from creating a bit of income on my own. I have written two books. “Pam-Allah’s Poetry of the Heart”…[Read more]
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Pamela Muhammad replied to the topic A Communal Living Space For People With Disabilities in the forum Adults With SMA 3 years, 3 months ago
Sounds great for those that like company, to socialize etc. I’m a more private person. But best wishes. 😊
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Pamela Muhammad replied to the topic Having your significant other as your caregiver in the forum SMA and Dating/Relationships 3 years, 3 months ago
<p style=”text-align: right;”>To each’s own, as I stated in my previous commitment I personally would not want my husband to be my only caregiver,because I feel that all couples in relationships need some “me time” or “alone time”! Because we would run each other nuts..lol ( or nutter..lol)) However whomever disagrees and believe the op…[Read more]
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Kevin Schaefer and
Pamela Muhammad are now friends 3 years, 3 months ago
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