• Losing Abilities

    Posted by Community Member on August 5, 2020 at 12:04 pm

    Today’s 31 Days of SMA features one of our forum members Mike Huddleston. Not only does he share his journey with SMA type 3, he touches on the emotional toll losing the ability to walk takes. Despite never having walked, I can relate. I had a similar reaction and feeling of defeat with my feeding tube. Although losing abilities seems devastating, Mike suggests shifting your focus. By looking at the positives you can have a bright future filled with opportunities. Have you struggled with losing abilities? How have you coped?

    Community Member replied 2 Members · 1 Reply
  • 1 Reply
  • Community Member

    Member

    I handle the loss of abilities like I handle the death of loved ones. I mourn. I cry. I adapt and eventually move on. With the passage of time, I usually remember fondly the memories of using my now lost functions although at times there are some pangs of sadness.

Log in to reply.