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  Prognosis vs. Reality

  Posted by Community Member on May 16, 2026 at 6:52 am

  An acquaintance I knew with muscular dystrophy recently passed away at 36. In light of that, I’ve been thinking a lot about the prognosis I was given with my SMA diagnosis versus the reality I’ve lived. My parents were told I’d live until 3. I’m nearing my 30s myself now. That’s 10 times the years doctors thought I’d have.

  I’m not sure what to think about the math. But I do think it’s good to contemplate it, from time to time. What about you guys? What was your prognosis? Did you live to exceed it? What do you think about that? Maybe, in sharing, we can strengthen our perspectives.

  Community Member replied 2 weeks, 6 days ago 1 Member · 0 Replies

  • Diagnosis
  • Living with SMA
  • prognosis
  • SMA diagnosis
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