Public Group
active 23 hours, 18 minutes agoGroup Admins
This group is for SMA patients, caregivers and medical professionals to discuss the latest research and news related to SMA. Here, information regarding treatments, research and development will be shared, and any input from the SMA community is welcome.
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Andres Ceballos joined the group
Research and Development 23 hours, 18 minutes ago -
Tracy Odell joined the group
Research and Development 2 months ago -
DeAnn R started the topic
Scholar Rock Announcement in the forum SMA Therapy News 4 months, 2 weeks agoIt seems like advancements are coming at a fast rate. This statement from Scholar Rock indicates a new trial being initiated. http://www.curesma.org/news/scholar-rock-statement-may2019.html
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Javaria Malik joined the group
Research and Development 5 months, 2 weeks ago -
Atilla posted an update in the group
Research and Development 6 months, 1 week agoResearchers discover nerve repair mechanism
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Jennifer Lewis joined the group
Research and Development 6 months, 1 week ago -
Dave Woodward joined the group
Research and Development 8 months, 1 week ago -
Souad al baba joined the group
Research and Development 9 months ago -
DeAnn R posted an update in the group
Research and Development 9 months, 2 weeks agoBig news in the SMA world, The FDA Accepts BLA Filing and Priority Review for AVXS-101 to Treat SMA Type I “ZOLGENSMA” Learn more here: http://www.curesma.org/news/novartis-avexis-bla-acceptance.html?fbclid=IwAR29Y0Pam_tLaDD-vcTb18ODBldi47rO1Z-2ewr9edUGP6-PvTyxkg–el0
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Exciting news! @smajourney51 just did a podcast about this, which will be posted tomorrow.
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Patricia Hall joined the group
Research and Development 9 months, 3 weeks ago -
Kelly Miller joined the group
Research and Development 10 months, 2 weeks ago -
Tigran Kostanyan joined the group
Research and Development 10 months, 4 weeks ago -
DeAnn R posted an update in the group
Research and Development 11 months, 1 week agoNews from AveXis that they’ve filed for FDA approval for AVXS-101as gene therapy for type 1 infants. Here’s the article link: http://www.curesma.org/news/avexis-fda-approval-type-i.html?fbclid=IwAR3_IZEuX87u9mbmyykliyC6WBFnRgA2E8b863oSlgCZKU92rMQguAKh7P8
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Thanks for posting! Yeah I got the email this morning. It’s certainly exciting.
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DeAnn R joined the group
Research and Development 11 months, 1 week ago -
Gina Geary joined the group
Research and Development 11 months, 1 week ago -
Alex Zai joined the group
Research and Development 11 months, 2 weeks ago -
Daria Lavrovska joined the group
Research and Development 11 months, 3 weeks ago -
Mohamed Ibrahim joined the group
Research and Development 12 months ago -
Pruiney Lee joined the group
Research and Development 1 year ago -
Tyler Dukes joined the group
Research and Development 1 year, 1 month ago - Load More
