Alyssa Silva

Hi Deborah— yes! I recognized your name from Instagram. Which part of CT do you live in? Would be great to get together one day. 🙂

This post made me smile. My service dogs have changed my life for the better, too. Thanks for sharing, DeAnn.

Love these ideas DeAnn. I guess I haven’t really played many games in this quarantine because I don’t have any ideas for you haha. Although…

Not really a game, but my best friend and I have been FaceTiming and watching the same show on Netflix so we can talk about it while simultaneously watching it. I know there’s Netflix party but you can’t…[Read more]

Thanks for all the input! Yes, I’d like to know how routines work as well? That would be a great and useful feature for me as well.

Crystal, I too have a close relationship with my brother! I’m so happy you have him to make this isolation a little less isolating. My brother is an essential worker and it’s been so hard not being able to see him. But, today his boss decided he can work from home now, so hopefully, I can see him soon! We’ll probably give it 14 days just in case.…[Read more]

Love the Office Ladies shout out! Playing off that, I’ve been watching videos and teaching myself how to use new programs. For example, I’m learning how to use Adobe Illustrator, so when I’m practicing I listen to that podcast! The Office is my favorite show.

The best way for me to stay (healthily) distracted by what’s going on is by finding…[Read more]

$20,000!!!??? That is truly incredible. Congratulations girl!!

I’m so sorry the lumbar punctures have been troublesome for you, Chelsea. Hopefully, risdiplam will be the solution for you. It does sound promising.

Like you, I’ve suspended PCA services for the time being. My dad also got special permission to work from home because of my situation.

I’ve been basically quarantining myself since Christmas, so not that much has changed over here. Granted before covid, I was more lenient. I had friends over, went to friends’ houses, and snuck out a couple of…[Read more]

I hope it doesn’t get to that point either. I’m also afraid that if my PCAs are suspended for too long, I’ll lose my services altogether. Such a fine line I’m “walking” on right now.

Thanks for sharing DeAnn. What a great thing they’re doing.

Awww I’m so sorry it was canceled, Halsey. I may have to pick your brain, though, about that online auction. I’ve been considering it for my nonprofit. 🙂

I’ve had my eye on this drug for a while. Thinking it’d be a good cocktail with Spinraza. Happy to see things moving in the right direction.

Thank you for sharing these helpful tips, Michael. From a mental health standpoint, find activities you enjoy and can unwind to. After all, stress can weaken our immune systems. I’ve been overwhelmed with everything going on, and even though I’ve been quarantined for a while now, I woke up with a little cold over the weekend. I think this is all…[Read more]

Such great ideas, Kevin. Thanks for sharing.

My friend sent me this link today. It’s 450 Ivy League courses you can take FOR FREE online. Kind of a genius thing to offer during this quarantine. As a nerd, I sure am pumped about it— signed up for an entrepreneurship class at UPenn. :)…[Read more]