@alyssa-silva
-
Alyssa Silva replied to the topic Hello, Disappointment in the forum Adults With SMA 2 days, 6 hours ago
Thanks for sharing, Blake. Also right there with you on the whole not feeling guilty thing towards screen time. What you said is so true! It’s really the gateway to my work, play, creativity, social interaction, and beyond.
-
Alyssa Silva started the topic “Special” on Netflix in the forum Adults With SMA 2 days, 6 hours ago
Has anyone seen “Special” on Netflix? I know I’m a little late to the party here as the second, and latest, season premiered over the summer, but I recently started watching it and love it.
Basically, it’s a comedy series about a man with cerebral palsy and his experiences with family, friends, work, etc. That man is Ryan O’Connell, and he star…[Read more]
-
Alyssa Silva started the topic Hello, Disappointment in the forum Adults With SMA 3 days, 11 hours ago
For much of this year and last, I feel as though I’ve been sitting on the sidelines of life. The pandemic really put a pause on everything for me, and given the fact that things are still messy out there and I don’t feel comfortable resuming my normal life again, it very much feels like I’m watching others move on while I’m “stuck.” Of course, I’v…[Read more]
-
Alyssa Silva started the topic Rare Side Effect From Vaccine in the forum Coronavirus (COVID-19) and SMA 5 days, 11 hours ago
Happy to report I got my booster shot for the Covid vaccine. I did want to mention that I got a rare side effect— a strong metallic taste in my mouth— for a few days after the fact though. According to NBC News, it’s a rare but real phenomenon. So, I did that thing where I went down a rabbit hole of information upon learning this which I know…[Read more]
-
Alyssa Silva started the topic Happy Thanksgiving! in the forum Adults With SMA 1 week, 3 days ago
Wanted to wish all of our American members a happy Thanksgiving before signing off for a few days. (Just a heads up, moderators have tomorrow and Friday off but will still be checking in.) I know for many of us things are still different, and we’re all still taking necessary Covid measures which makes celebrating the holidays with loved ones all t…[Read more]
-
Alyssa Silva replied to the topic Covid Spoils Thanksgiving Again in the forum Coronavirus (COVID-19) and SMA 1 week, 3 days ago
Ugh I’m sorry to hear that DeAnn. I can definitely relate to the feeling of everyone living carefree again and your own life seems to be put on pause. It’s been really tough on my mental health. I’m hoping to see my brother and his fam tomorrow as well as my grandparents, but a lot could happen in 24 hours so I’m not getting my hopes up just ye…[Read more]
-
Alyssa Silva replied to the topic Home Automation Ideas in the forum Adults With SMA 1 week, 3 days ago
Yeah I thought it was pretty cool! Made me realize there’s sooo much I can do with technology that I don’t even know about. I was reading the blog in that video that explains how to set it all up, and it seems pretty intricate. But I still might give it a shot.
-
Alyssa Silva started the topic Home Automation Ideas in the forum Adults With SMA 1 week, 5 days ago
Hey guys! I watched this video the other day for home automation ideas and thought it was pretty cool. It also gave me some good ideas for things to add to my Christmas list. Thought I’d share it here since we’re always looking for ways to make our lives a little easier and more adaptive!
-
Alyssa Silva replied to the topic Budgeting for PCAs in the forum Adults With SMA 1 week, 6 days ago
Yes, I still live at home with my parents who are able to care for me. I’m not sure if my hours’ cap would increase, but I assume I’d be re-evaluated to prove that I need more hours. Not sure if I would actually get approved though.
-
Alyssa Silva replied to the topic Budgeting for PCAs in the forum Adults With SMA 2 weeks, 1 day ago
Yes, I’m capped off at 80 hours with a pay rate of $13.75/hr per week.
-
Alyssa Silva replied to the topic Budgeting for PCAs in the forum Adults With SMA 2 weeks, 2 days ago
To go off of what DeAnn said, I receive consumer direct services which is covered by my Medicaid. The company I go through gives me a budget based on my needs and I do the hiring. The typical rate is $13.75/hr which is sadly not enough, but I have to stick to the budget of course.
-
Alyssa Silva started the topic Ways to Nurture Your Mental Health in the forum Adults With SMA 2 weeks, 3 days ago
Tis the season for darkness, chilly weather, and seasonal affective disorder, unfortunately. I can already feel the doldrums of winter starting to creep into my mind as I watch the sun set at 4:30 pm. These next few months are always challenging on my mental health, especially because I stay home more during cold and flu season. But I’ve started t…[Read more]
-
Alyssa Silva started the topic Person-First Or Disability-First Language? in the forum Adults With SMA 2 weeks, 5 days ago
I loved Halsey’s recent column about the “correct” way to refer to someone who has a disability. Textbooks, the media, society, and many other outlets push the idea that person-first language is the proper way to refer to someone. Halsey challenges this idea by questioning why we’re limiting ourselves to a one-size-fits-all kind of solutio…[Read more]
-
Alyssa Silva replied to the topic Rising Above Challenges Like The Phoenix in the forum The SMA News Today YouTube Channel 2 weeks, 5 days ago
I’m proud of you too! Loved watching how you sew. This video reminded me of how I lost the ability to draw in high school and how devastated I was. Drawing was my favorite pastime and after one stint in the hospital, I lost use of my arms. It took many years, but I discovered how to draw again using just one finger on my computer. While I had no o…[Read more]
-
Alyssa Silva replied to the topic Qualifying Disability-Related Expenses for ABLE Accounts in the forum Adults With SMA 2 weeks, 5 days ago
Thanks Tom!
-
Alyssa Silva replied to the topic Awesome Representation Through a Music Video in the forum Raising Awareness of SMA 3 weeks, 1 day ago
This is really awesome!!!
-
Alyssa Silva replied to the topic I've Been Boosted! in the forum Coronavirus (COVID-19) and SMA 3 weeks, 1 day ago
Amazing! I’m getting the Moderna booster in an hour. I’m a little nervous because I only got 2 hours of sleep last night, so I’m not at my best right now. But really happy to be getting it in time for the holidays.
-
Alyssa Silva started the topic Qualifying Disability-Related Expenses for ABLE Accounts in the forum Adults With SMA 3 weeks, 1 day ago
So I’m new to the world of ABLE accounts and am trying to figure everything out. I know we can only spend what’s in the account on certain things, or qualifying disability-related expenses, but how technical can I get here? QDE’s are stated as:
“A qualified disability expense (QDE) is any expense related to the account owner’s blindness or disa…[Read more]
-
Alyssa Silva replied to the topic Broken Tooth in the forum Adults With SMA 3 weeks, 3 days ago
I probably would have done the same. I used to be fine at the dentist until one day I had a severe reaction to Novocain. I’ve honestly never been the same since the reaction and no one really knows exactly what happened. Yay for being a medical mystery…
-
Alyssa Silva replied to the topic Alfamino Formula (AA Diet) in the forum Adults With SMA 3 weeks, 3 days ago
I have not heard of Soylent but will definitely look into it and bring it up to my GI specialist. Thank you for the recommendation!
I remember you telling me that you take vitamin D and a liquid multivitamin. I was so hopeful to try the same supplements but it didn’t go well for me. It was pretty frustrating, to say the least. My stomach is u…[Read more]
- Load More
