Alyssa Silva

My medical records actually say type 1/2 because I’m sort of in-between the textbook diagnoses for both. But I agree that typing is becoming less effective now with treatments. I think even in general, though. Even with types, SMA presents so differently in everyone that I can’t see how much of a difference being classified under a certain type would make.

This resonates with me so, so much right now.

Hey Angela. I strongly recommend talking to a doctor to help you arrive at your decision. I had similar fears that were communicated well to my doctors even though I knew I was going to get it regardless. They helped ease my fears.

For me, I had no symptoms after the first shot but did after the second. I was really run down and had a mild fever…[Read more]

Wow that boat guy sounds awesome. I’ve always wanted to see Texas, I’ll definitely have to add San Antonio to the list!

That’s so interesting to hear that Spain is accessible! And also amazing. I’ve been to Portugal a few times, and it was not all that accessible. My grandfather had to rent an ambulance transport for me to travel around the country in my wheelchair ahaha. But even then, much of the buildings weren’t wheelchair accessible. The heavily traff…[Read more]

That sounds like fun! I actually just quit my first ever job (I mentioned it here in a recent forum) which I started working at right out of college. I started out as a social media manager and then became more of a virtual assistant to the owner of a local gym. I was there for 8 years!

Still waiting (impatiently) for Moderna to approve booster vaccines, but yes, I’ll definitely be getting it. And the flu shot, too. Probably later this month. Masking up will still be a must, too!

Hey Kelly, have you tried renting kindle books from your local library? They were getting expensive for me as well until I found out I could rent them! Everything is done online, so it’s super convenient too.

I want to start reading some fall-themed books, so I have The Sun Down Motel in my library rental queue but would love some more options!

Yes, I prefer my caregivers make the phone calls whenever possible, too. A little unrelated to this post, but the new iPhone recognizes my voice much better than my old iPhone 11. I’m definitely impressed and will likely be using speech to text more often.

Oh man. I hate the smell of ketchup too but that’s gotta be the lesser of two evils for me. Running over toothpaste… now that’s something I wouldn’t hate haha.

Minor details 😂

Oh I didn’t know that! That’s actually really good to know. Thanks for the heads up.

All right, it’s settled. SMA News Today field trip to Alaska.