Alyssa Silva

Haha, such a polite wheelchair!

Oh, I never thought about it draining the battery. That’s a good point. My mom said yesterday that it was flashing while I was driving it which would make sense (even though it still doesn’t explain why). So the fact it blinks even when it’s off is slightly concerning. I don’t want to ruin my chair.

So bizarre. I wonder if the reps don’t even know what it means haha.

I’ve heard good things about these shows as well! And Bridgerton. I don’t know if I spelled that correctly haha, but I’ve read a lot of buzz about that show, too.

So happy to hear this! I go back and forth between wanting it, like, yesterday and being in no rush. I’m home anyway because of the regular cold and flu season, so in some way, I’d prefer to wait (not too long) and see how others do. Given my uniqueness (very small, underweight, weak, etc) I’m slightly hesitant about the idea of reacting to the v…[Read more]

Interesting! Thanks for the info!

I am so happy to hear that! How exciting. (Who would have thought a shot would be exciting in 2021?!) My physician said the office isn’t equipped to store the vaccine yet and probably won’t be for a long time. I’m not sure where I’ll get it when it’s my turn.

Yes, same with my grandparents! Everything is so backward, and it seems as though no one knows what is going on. I’m also frustrated by the number of people who have received it and aren’t yet qualified in phase 1. This has happened quite a few times in RI simply because they know someone working in the clinics. I’m sure it’s happening in other s…[Read more]

I’m not too well versed with adaptive sports as an adult, but I did play adaptive soccer as a kid. I hated it! Haha but only because I learned I am the LEAST competitive person and that’s definitely NOT the quality you want in an athlete. I used to play goalie and would let the team score because I felt bad blocking them. I think I’ll stick to wa…[Read more]

Thank you for all this helpful info! I think I might present this to my SMA team of doctors and see what they suggest next. It’s great to hear your firsthand perspectives first, though!

Kip, I don’t think that’s wrong at all. We all have our own personal preferences, and when it comes to dating and relationships, one size doesn’t fit all. I do think it’s a little unfair for others to box us in like that assuming because we’re disabled we have to date other disabled folks too. I’ve had people say that to me as well. It’s like t…[Read more]

I think you’re absolutely right Patrick. The media definitely has a heavy influence on sexuality, and it seems as though there isn’t a seat for us at the table. Thank you for sharing your story with us. It gives me hope! And I love that you and your partner were friends first. That’s the kind of situation I’m hoping for as well. Do you mind me…[Read more]

This has been one of the main reasons why I’m hesitant to make the switch as I have a truckload of GI issues. Thank you for being transparent here DeAnn and Kip. Let’s just say I have the opposite problem of diarrhea, motility is SO slow. I heard bananas can be a contributing factor, so I avoid them. I wonder if it would help you guys at all??

Omg this looks like an answer to my prayers. Thanks for sharing!!

Tyler is awesome! So glad you scored a podcast with him. 🙂