Alyssa Silva

I’m so happy you’re saying this DeAnn because that also crossed my mind and I thought I was crazy. I’m not on allergy meds because even the non-drowsy ones make me drowsy. I don’t have a lot of secretions, but I do at night because of my BiPAP. Definitely bringing this up to my ENT.

Thanks, Dennis and Halsey. If one thing for sure it’s that I do…[Read more]

There was a lot I missed out on as a kid due to either being sick or just germs in general at Christmastime. I don’t know why, but I have this one vivid memory of being a kid and having to miss out on Christmas day festivities because I had a fever. Instead, my mom and I stayed home in our PJs and watched Miracle on 34th Street, and it really w…[Read more]

Always provide pizza, and your guests will be happy. 🙂

But, like DeAnn said, don’t stress! When I host parties I ask people to bring either an appetizer or dessert. Then I go shopping for the main dishes (burgers, dogs, pizza, etc.), drinks, and cutlery. This obviously won’t apply to your movie night but I always make a playlist on Spotify to…[Read more]

I’m a little confused. Doesn’t our CSF get tested regularly already? After each injection, I always get lab results of my CSF. Does that not happen at all injection sites??

Kala’s column resonated with me as well. Ugh. I’m not a fan of this time of year in that respect. Personally, I’ve found that if I’m not sick within 48 hours, I’m safe. If I know they are sick ahead of time, I wait 7-10 days from their earliest symptoms before seeing them again.

Those are some great ideas, guys! That’s so tough with the policies these agencies set in place, but I’m glad you found your way around it, Halsey! I’ll definitely keep that in mind if that’s ever an issue for me.

DeAnn, I typically get my succulents at a local garden nursery that’s basically the Disneyland of plants haha. But I believe Lowe’s an…[Read more]

I’m happy to hear that, DeAnn! Hopefully I’ll see what all the hype is about on Christmas morning.

Locks at another great idea, Halsey. I’ll have to look into that as well.

Oh no way! Can’t wait to read it 🙂

Thanks Halsey! As I’m sure you’ve learned from volunteering at Turnstone, it’s so rewarding to be involved with something that’s bigger than yourself. It’s amazing to see what happens when people ban together to fight for a greater good.

It’s called Working On Walking, and we raise money and awareness for SMA. It is both challenging and rewarding, but the rewarding aspect far outweighs the challenges to make it worth it. 🙂

I’m kind of with ya on your thoughts regarding Giving Tuesday. Plus, I think with everyone promoting their organizations, it’s easy to get lost in the mix.…[Read more]

I’m definitely in a love/hate relationship with social media. On one end, it has helped me not only keep in touch with my friends and family but also connect with so many incredible people from all different walks of life. They’ve enriched my life in some way, and I’m truly grateful for the power of social media.

That being said, it can also…[Read more]

An Alexa microwave sounds so cool! But, as you said, I wouldn’t really get much use out of it because I can’t use one to begin with. I really want one of those bluetooth thermostats (can’t think of the name right one) that’s compatible with Alexa. Such an odd wish list haha but what can I say

What DeAnn said! That is SO cool.

That sounds delicious! I agree with the cookbook idea. Or a food blog 🙂

How incredible, Mike! Thank you for sharing this with us. May you have continued improvements and become one step to standing each day— regardless of which treatment (Spinraza vs. Risdiplam) you choose. So crazy to think that, in 2020, we’ll have choices!

I’m pretty sure I just did it wrong haha.