@alyssa-silva
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Alyssa Silva replied to the topic iPhone Accessibility Hack in the forum Adults With SMA 11 hours, 37 minutes ago
Voice control, that’s what I meant! 😳 Do you find that your phone picks up other people’s voices, though? I was in a noisy area when my cousin set it up, and my phone kept doing voice commands based on conversations it heard around me. Is there a way to avoid this?
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Alyssa Silva started the topic iPhone Accessibility Hack in the forum Adults With SMA 20 hours, 25 minutes ago
This weekend, I got schooled by my 10-year-old cousin on how to use my iPhone which made me feel old. Pretty sure I was using an iPhone before he was even born, so that’s awkward.
He set up voice commands on my phone which I thought was awesome. Typically I just use assistive touch, and that’s it. Do you use voice commands? What other fea…[Read more]
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Alyssa Silva replied to the topic SSI Restoration Act of 2021 in the forum Adults With SMA 4 days, 12 hours ago
Thanks!
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Alyssa Silva started the topic Percussion Therapy in the forum Adults With SMA 4 days, 20 hours ago
Is percussion therapy a part of your routine? Something you do only when you’re sick?
I will admit, it is something that SHOULD be a part of my daily routine but I falter.
Percussion therapy is performed to loosen mucous in your lungs and assist with coughing. If there is no mucous in your lungs, it is still a great preventative tool to k…[Read more]
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Alyssa Silva replied to the topic SSI Restoration Act of 2021 in the forum Adults With SMA 5 days, 19 hours ago
Blake, if you don’t mind me asking, what state is your ABLE account located in? I’ve wanted to open one for a while now but I think I’m on information overload about it and can’t make a decision. I was toying between Ohio, California, Virginia, or my home state of Rhode Island.
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Alyssa Silva replied to the topic Inspiration Porn or Inspirational? in the forum Disability in Media 5 days, 19 hours ago
I think this specific story is really awesome. The innovation and creativity that went into this are inspiring to me as a creative. Makes me realize there are solutions to most things if I just take the time to think outside of the box.
But if I see one more “Girl takes disabled boy to prom” headline…
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Alyssa Silva replied to the topic Columnist Writes About Ebbs and Flows of Disability Pride in the forum Adults With SMA 5 days, 20 hours ago
Agreed. That’s how I think of the word “success,” too.
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Alyssa Silva started the topic Food Delivery Subscriptions? in the forum Adults With SMA 5 days, 20 hours ago
Right now, I’m struggling to find caregivers and have been relying more on my parents for my needs. They’re getting older, so I try not to ask for more than what I need, which is already a lot. I wouldn’t say I’m high maintenance per se, but like… I do require a lot of maintenance. 😉
I’ve been looking into food delivery options that could give…[Read more]
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Alyssa Silva started the topic Columnist Writes About Ebbs and Flows of Disability Pride in the forum Adults With SMA 1 week ago
July is Disability Pride Month, and in my latest column, I discuss how my journey with disability pride isn’t linear. Yes, I am proud of the person I am and that includes my disability, but some days are still challenging. Some days, my disability pride is overshadowed by the seemingly endless feat that everything about my body is out of my c…[Read more]
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Alyssa Silva replied to the topic Welcome, New Members in the forum SMA Forums Welcome Lounge 1 week, 1 day ago
Hey Blake, welcome! I’m one of the moderators here. If you have any questions about the forums or anything feel free to PM me. Looking forward to having you here.
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Alyssa Silva replied to the topic SSI Restoration Act of 2021 in the forum Adults With SMA 1 week, 1 day ago
Seriously! Even with ABLE accounts, we’re still so restricted. It’s so sad.
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Alyssa Silva replied to the topic Service Dog Recertification – Horton's Got Skills in the forum The SMA News Today YouTube Channel 1 week, 1 day ago
Wow! I’m surprised you have to submit recertifications. I’ve never had to do that from the org I get my service dogs from. What would happen if… God forbid… someone fails? They wouldn’t take the dog away, would they? I can’t imagine breaking that bond.
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Alyssa Silva replied to the topic Injection Day Woes in the forum Spinraza 1 week, 4 days ago
Yes, I’ve started to feel the slump as well. Usually hits me around week 10. Do you get yours done at Boston Children’s? For some reason, I feel like you said Mass Gen once though.
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Alyssa Silva started the topic Injection Day Woes in the forum Spinraza 1 week, 4 days ago
Yesterday marked Spinraza dose number 18 for me. Without diving too deep into my recent struggles, my body has been dealing with some extra health issues which were ultimately going to affect my injection yesterday. Long story short, I get really sick laying in a certain position now, the same and only position I can be in for the spinal taps…[Read more]
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Alyssa Silva started the topic Need a Summer Read? in the forum Disability in Media 1 week, 5 days ago
I’ve never been an avid reader, but I decided to stop using my phone to read and bought a Kindle last month. Turns out it was such a game-changer for me. I love it.
Anyway, I’ve read a lot of books in the last month or so and have been on the lookout for more to read. Recently, I came across this article of books to read by disabled authors and…[Read more]
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Alyssa Silva replied to the topic SSI Restoration Act of 2021 in the forum Adults With SMA 1 week, 6 days ago
Oh don’t be sorry! To be completely honest, I just recently learned about it too, so I don’t know all the details. But, yes. I believe they would be raising the amount to meet the Federal Poverty level and would adjust that annually. As of right. no, it hasn’t be adjusted in 30 years.
Removing the marriage ban would be for both disabled and inter…[Read more]
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Alyssa Silva started the topic SSI Restoration Act of 2021 in the forum Adults With SMA 2 weeks ago
Hey all. This has been circulating around social media for the last week or so, and I wanted to bring it to your attention too.
Basically, a new SSI Restoration Act of 2021 was introduced in the US last month that aims to eradicate disabled poverty by:
Raising monthly income to the poverty level for the disabled (a 30% increase)
Change the…[Read more] -
Alyssa Silva replied to the topic Disability Adds Complexity in the forum Adults With SMA 2 weeks, 4 days ago
Yes, I’ve had to do this before as well. I’m surprised how long yours has lasted! I think my transmission went after 7 or 8 years. Have you ever rented a handicapped van in the meantime? They’re a little costly, but even if you had it for a day or two so you wouldn’t be stuck inside for 10 days might be worth it.
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Alyssa Silva started the topic Would You Rather – Favorite Way to Cough Edition in the forum Would You Rather? 2 weeks, 4 days ago
Hey all. Living with SMA means we may need some assistance with coughing, especially when we’re sick. My coworkers (who have SMA) and I were talking about this the other day and what our respiratory regimen looks like when we’re dealing with a cold. Personally, I like to keep it old school and do chest PT in the Trendelenburg position as opp…[Read more]
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Alyssa Silva started the topic Social Anxiety in the forum Coronavirus (COVID-19) and SMA 2 weeks, 5 days ago
How’s everyone doing now that we’re well into a world where restrictions are easing up?
I longed for this day for so long, but it is nothing like I thought it’d be, to be completely honest. I thought I’d be much happier and relieved. Instead, I find myself having social anxiety in small groups— even if it’s around family or close friends I’v…[Read more]
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