Dennis Turner

Actually, the big front wheels are set enough back that the foot plates go way beyond them. I have small “anti-tipper” wheels in front of the drive wheels that only touch the ground when i stop too quickly or go down too steep a slope, but even these do not go as far as my foot plates.
My permobil f3 has the tilt function you were saying you…[Read more]

I have only had a front wheel drive, so can’t really tell you the learning curve.
I think i would hate midwheel drive because of them having all them wheels…
Seriously, i sat in my front wheel drive chair and was able to roll around the busy rehab with it in seconds. Only took out a few dozen people and two walls.
You are smart and will adapt.

I think region by region it is different, but in Massachusetts, almost everyone is wearing a mask, and most are being respectful.
Just be careful and don’t fear.

Sorry Lupa, I know you had hopes this would solve the problem.

I hear you Lupa! My F3 needs to have the left arm raised when i am in the car because of my seatbelt. It crashes down on my shoulder all the time.

IF anyone has an easy fix, I definitely want to hear it.
Dennis

My wife complains when i sit directly in the sun and it is over 90. Me, i love it. It is probably the only time i don’t feel chilly.

Ask them to PLEASE wear a mask and gloves. This is a simple request and should be honored.

I had my last of the loading doses in May.

At this point i can say i feel a bit stronger, tire less quickly, but the really big thing for me is that i don’t feel like i am losing my strength anymore. There are still some muscles that don’t do what they did last week, but it is not as frequent. Small wins matter.

REPLACE!

A clear face shield and a single layer of bandana might work for you. I wear a reusable cloth mask made by a friend from church, but it is very restricting compared to the surgical masks i have from the hospital.
Glad to hear you finally got your Spinraza, Alyssa. Praying you get your bounce back.

Be direct. Ask me. Also don’t assume i can’t do whatever activity and so not offer it up as a possibility, i won’t be able to kite surf, but i might love watching friends try.

My plan is to continue social distancing. I have been sitting outside in the sun as much as possible, which isn’t all that often recently.

I had a pt eval as part of an ongoing trial today, 4 hours in the clinic. My doctor said she had needed to fight with the hospital administrators to keep Spinraza as essential therapy. I am thankful for that.

Get mine Thursday!
Praying.

I sure hope so!
As you said, the idea of going to the hospital to discuss my “routine” care, when I am not having special issues is just frustrating. My Neurologist had already begun scheduling these appointments via teleconference software.

I am a huge fan.

Yup, i am still getting mine,and so far right on time. My next dose is my final loading dose and is the first week in May.
Fingers crossed!

I had my last shot at MGH, they considered it a critical procedure. Hopefully the surge will be past by May when i am scheduled for my next loading shot.

Don’t know what to say about your intestinal spasms.

I had my 2nd loading dose 2 weeks agoo and am scheduled for another this Thursday.
The last went well, although it felt like a bit of a warzone as I went through different checkpoints to get to the surgical suite.
I admit that i am thinking about canceling for this next. Over 200 caregivers at Massachusetts General Hospital have tested positive.…[Read more]

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Good luck, let us know if it works.

That was what i received last year, plus a lambskin that has been a wonderful thing for my heels at night. All the stuff i got has been very helpful.