Dennis Turner

The prep requires you to drink tons of nasty tasting laxative to clean you out, with the issue of constantly going to the bathroom over many hours. As for sedation, I was given Valium at least first, they might have given me something more after I was out, it was a couple years ago. I should have had another earlier this year, but for me it was…[Read more]

Yes! I had my 2nd on Tuesday. Pfizer. No issues, no problem the next couple days.

Now 11 more days to fully vaccinated.

Just got my second a couple hours ago. No issues at all.

It was a big nothing for me. Didn’t even feel the needle.

Like Deann, I have had my last two injections one vertebra up from where they wanted to place it. This is because I am in a trial that requires them to remove some CSF (I think 15 cc) and they were unable to draw it in the lower section.  This is drawn prior to my injection and alway shows that I have outside cells in the CSF.  My neuro laughs a…[Read more]

Got my first dose! The hospital contacted me and told me to come get it!

Love it! I have the strength and agility to use it and have watched the journey as Zach had perfected it.

That said, I have no place to store it.

I do see this as a great tool to enable someone who needs to use a wheelchair full time to be outside, perhaps on a less accessible trail with nature around.

Although there are other offroad chairs,…[Read more]

I am a 250 lbs male with an approximately 450 lb chair. We have a converted Dodge Caravan with side entry and manual ramp with electric sliding doors. My wife says the manual ramp is easy to unfold and fold; she does it with one hand. We did make a loop through the bottom slat of the ramp so she doesn’t accidentally scrape her hand on pavement…[Read more]

I still don’t qualify for the vaccine. But I did just get a notice that I will “soon”.

I am looking forward to being a bit less cautious.

DeAnn, You, and all of us, are worth the perceived and oftentimes real cost.

I live in New England where I often see that despite the Americans with Disabilities Act many of the buildings/shops are protected by grandfathering from having to add a simple means of access. In Rockport, Glouster, and even in parts of Boston, buildings were built with…[Read more]

You should feel better quickly.  Don’t expect Spinraza to start working immediately,  for me it was about 3 months before I started  to have minor changes.

It is still worth waiting!

I am waiting mine as well. I have heard it may be the end of the month that I get the first.

It varies by state. My neuro sent me a text yesterday saying I should register NOW! The state site would not let me until Sunday.

When I told her that, she sent back a message to set my alarm and be the first on the first at midnight.

My wheelchair is my legs.

Be very squeaky.

That being said, I have been having problems with my chair since November 8th and the challenges just keep escalating. This past weekend it stopped working at 7pm and suddenly turned on Sunday afternoon. Then on Sunday evening it died again but worked on Monday morning.

My chair repair people won’t be…[Read more]

Personally, I nap.

In my chair.

Daily.

In full disclosure, I have “old man syndrome” which means I can sleep anywhere, anytime, except when I am riding in the car.

If I had a full time caregiver I might think about getting into my bed but since I only have a couple hours of help a week and the enormous help of my wife, who is out working much…[Read more]

I have an F3 and have never seen that blinking light. Most likely it is telling thank you for giving me new power?

Have you still taking Spinraza? If so you must be almost ready for another injection. Mine is Thursday.

Beyond that life is going well.

Do you end up with a copay?

Please let us know how it all works out for you!

I was told it wouldn’t be covered and I needed to pay out of pocket for it four and a half years ago, but when I got the chair it had been covered. I can’t even imagine how difficult life would be without it for me.

I watched it, because it starred a truly disabled woman. It was as sappy as expected, but did a good job of showing her interacting with others and her environment.