Biography

Name

Slava

Nickname

slava

Year of Birth

1978

Gender

Male

Location

Russia

Relationship

Patient

Short Bio

I’ve been living diagnosed with SMA almost all my life. I’m 42 years old at the moment. Mom says that I had been able to stand independently before I turned six months when the world collapsed. I’ve never felt that way anyway. I had good schooling. I had lots of teachers come into my home. Right now I’m focused on finding the ways out of my trouble. Aside from that I do web designing, video editing, and CGI/VFX.

SMA Type

Type II

How did you hear about us?

SMA News Website

How long have you or the person that you are caring for had SMA?

42 years

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