Brianna Albers

Happy March! My friend and fellow columnist, Sherry, reminded me to rest a little while ago when I had a head cold. Our conversation reminded me of the importance of having friends who really “get” your situation, especially when it comes to SMA, so I wrote a column about it.

Can you relate? How have SMA friends impacted your life?

Hey, fam. If you follow me on Twitter, you probably know that I received the denial for Evrysdi. Their reasons for doing so are pretty ridiculous, so I wrote a thread about my experience with the application process. It would mean the world to me if you RTed it – I’m trying to get it in front of as many eyes as possible.

Any advice?

Happy Tuesday! I woke up with a head cold the other day, so I canceled my seating appointment. I decided to write a column about the realization I had after the fact, which was more than welcome.

On the topic of head colds: Any tips for weathering them? My ears are literally still clogged.

All this talk of winter storms is making me think of our disabled fam who are probably struggling without power right now. What plans do you have in place in terms of disaster preparedness?

Happy Tuesday! I’ve been rewatching “Lost” and having the time of my life, so I decided to write about John Locke, a disabled character with a controversial arc.

Have you seen “Lost”? If so, what did you think of Locke as a character?

It’s been a while since I updated y’all. My insurance keeps denying my appeals because I’m “on full-time vent support” (I’m not, which is clearly stated in the letter) and because we didn’t include a way to monitor my progress on the medication, even though we did. I’m starting to get pretty frustrated.

Do any of you have tips on getting…[Read more]

Happy Tuesday! My latest column took a bit of a nostalgic turn — I recently rediscovered my love of Pillsbury toaster strudels, so of course, I had to write about it!

What were some of your favorite childhood foods? Have you also turned to nostalgia during the pandemic?

Happy Friday!

I don’t think we’ve done one of these in a while! Drop your social handles below and we can follow one another.

I’m @briehalbers everywhere, but I’m most active on Twitter and Instagram!

Happy February!

In honor of Sherry Toh’s first column, I decided to write about befriending her, and my experience with internalized ableism and a desire to belong. I got very personal with this piece.

Here’s an excerpt: “Of course, I was young and dumb. But ableism is never benign. Ableism is insidious and toxic and, in many cases, l…[Read more]

Anyone know how to figure out where you are in the vaccination queue? I thought about asking my PCP but I’m sure many people are thinking similarly.

Happy Tuesday! My latest column is about my new wheelchair. I’m excited, but also dreading the process of adjusting. I hate it so much!

Can you relate? What tips do you have for adapting to a new chair?

My PCP has been out of office for over a year and I have no idea when she’s actually going to return, so I’ve decided to switch PCPs. I have a consultation scheduled for Feb. 15. Any ideas as to questions I should ask my new doctor?