Kelly Miller

Brianna, when you say your mom has handled everything, what do you mean by everything?

How exciting, DeAnn, that you are getting almost a whole new life very soon! I remember when I was in college, my Psych 101 class taught us how any kind of change, even something good like marriage or a promotion, can bring stress into our lives. I’d be more worried about you if you weren’t feeling some stress.

I did a demo with the JACO a few…[Read more]

Alyssa, I’m so excited to hear about your new job! I think both men and women who have disabilities struggle with the way “regular” clothes fit them. I for one look forward to seeing what you come up with as soon as you’re ready. Keep us posted.

I had a totally unexpected stay beginning January to end of April, which entailed getting a trach and now on a vent at home (a story for another time). Unfortunately I had to try to remember everything to take while I was struggling to breathe. I think preparing a bag ahead of time, even if you have to add to it as you go out the door, is a really…[Read more]

So having worked for Social Security for 17 years,  12 of which were spent doing a lot of Medicare, I can say it will definitely be Part D. The only way it would be Part B would be if we get the medicine administered to us while at the Dr office by the staff. Any meds we give ourselves is going to be under Part D.

Now, today I got an email…[Read more]

I’m so excited, I can hardly wait for the two weeks until they actually get the med out! I didn’t want to do Spinraza b/c of the whole having to get injections in my spine, not to mention my fear of possible side effects. Ever since I first heard they were investigating a possible drug that would be taken orally or thru a g-tube, I’ve been…[Read more]

I was prescribed gabapentin a couple of years ago by a palliative medical doctor. I was trying to find that perfect combo of meds to deal with my pain, willing to try anything at that point. I started feeling the side effects pretty much right away. It began with the dizziness others here have mentioned which quickly turned into nausea. I also had…[Read more]

Brianna, check out the post just recently by DeAnn regarding SPC’s!

Like Rachel said, it is an awful lot to post if I post my whole story about my SPC. But for the sake of informing people who don’t know, I will give you what I can.

Much like you DeAnn, I went YEARS doing it the old-fashioned way of sitting on the pot. It was rough at times when a friend had to lay me on the public bathroom floor to get my pants…[Read more]

That’s a suprapubic catheter. Are you familiar with those?

Halsey, I will definitely be talking to you when I get ready to get my new one! I don’t know a lot about Quantum, but I’m willing to find out. I can say very assuredly that I do not want another Permobil. I feel like they misrepresented my situation to me. They told me Invacare wasn’t making any more and that I couldn’t get them. I know they had…[Read more]

Alyssa, let us know how that works when you get the joystick adjusted.

I’ve had problems with running into walls & things since I got mine. One time, in my doctor’s parking lot, I hit the back of a parked car so bad I thought my hand was broken. It had been sitting normally on the armrest when I slammed into the back right of the car, tearing off…[Read more]

Okay, I’m trying to think of the positive things to say here about this chair… I like the way it looks!

So here is what happened to me. I had an Invacare for 10+ yrs. I absolutely loved that chair. It was sturdy and practically indestructible. It was a mid-wheel drive that I could steer like you wouldn’t believe with my sip and puff. After h…[Read more]

Brianna, please don’t think I’m trying to push you into something, but… Have you thought about getting a SPC? It would totally alleviate the worries about having to go to the bathroom and does allow you to hydrate like crazy. Again, just a thought. I had no idea what one was until someone suggested it to me in a forum, and I’m eternally grateful t…[Read more]

Crystal, I wouldn’t be surprised if Carson grows up to be the next Quentin Tarantino!

I’m not sure what you were referring to that you have a prescription for. Was it Flonase? I don’t feel like it has any more of an aftertaste than any of the others. Honestly, I feel like it works way better than any other brand. I swear by it!

When I did have major problems with allergies, it was always in Sep. & Jan. That’s when I would get…[Read more]

Luckily for me my husband loves music even more than I do, so he’s always game for traveling adventures to see a concert. Back in the day, before I met him, I had to rely on friends & family much like you. In Jan. 1994, the 28th Super Bowl was being held in my hometown of Atlanta. I managed to snag a free ticket from a friend. It was actually this…[Read more]

I was wondering also how the cough assist helps with your nose stuffiness. Do you have congestion in your chest also or is it just in your nose?

I use Flonase, and it’s been the best ever when my nose is the problem. I also have used Mucinex which seems to work wonders. It sounds like you are taking a lot of meds, so maybe increasing them isn’t…[Read more]