Kelly Miller

Brianna, check out the post just recently by DeAnn regarding SPC’s!

Like Rachel said, it is an awful lot to post if I post my whole story about my SPC. But for the sake of informing people who don’t know, I will give you what I can.

Much like you DeAnn, I went YEARS doing it the old-fashioned way of sitting on the pot. It was rough at times when a friend had to lay me on the public bathroom floor to get my pants…[Read more]

That’s a suprapubic catheter. Are you familiar with those?

Halsey, I will definitely be talking to you when I get ready to get my new one! I don’t know a lot about Quantum, but I’m willing to find out. I can say very assuredly that I do not want another Permobil. I feel like they misrepresented my situation to me. They told me Invacare wasn’t making any more and that I couldn’t get them. I know they had…[Read more]

Alyssa, let us know how that works when you get the joystick adjusted.

I’ve had problems with running into walls & things since I got mine. One time, in my doctor’s parking lot, I hit the back of a parked car so bad I thought my hand was broken. It had been sitting normally on the armrest when I slammed into the back right of the car, tearing off…[Read more]

Okay, I’m trying to think of the positive things to say here about this chair… I like the way it looks!

So here is what happened to me. I had an Invacare for 10+ yrs. I absolutely loved that chair. It was sturdy and practically indestructible. It was a mid-wheel drive that I could steer like you wouldn’t believe with my sip and puff. After h…[Read more]

Brianna, please don’t think I’m trying to push you into something, but… Have you thought about getting a SPC? It would totally alleviate the worries about having to go to the bathroom and does allow you to hydrate like crazy. Again, just a thought. I had no idea what one was until someone suggested it to me in a forum, and I’m eternally grateful t…[Read more]

Crystal, I wouldn’t be surprised if Carson grows up to be the next Quentin Tarantino!

I’m not sure what you were referring to that you have a prescription for. Was it Flonase? I don’t feel like it has any more of an aftertaste than any of the others. Honestly, I feel like it works way better than any other brand. I swear by it!

When I did have major problems with allergies, it was always in Sep. & Jan. That’s when I would get…[Read more]

Luckily for me my husband loves music even more than I do, so he’s always game for traveling adventures to see a concert. Back in the day, before I met him, I had to rely on friends & family much like you. In Jan. 1994, the 28th Super Bowl was being held in my hometown of Atlanta. I managed to snag a free ticket from a friend. It was actually this…[Read more]

I was wondering also how the cough assist helps with your nose stuffiness. Do you have congestion in your chest also or is it just in your nose?

I use Flonase, and it’s been the best ever when my nose is the problem. I also have used Mucinex which seems to work wonders. It sounds like you are taking a lot of meds, so maybe increasing them isn’t…[Read more]

Ohhhhh, this makes me sooooo happy! I use Publix drive-up (our grocery store) all the time because my husband hates going to the grocery for full-fledged shopping. I’ve also used the Walmart drive-up, and we won’t even talk about how many times I’ve ordered from Door Dash! It is getting to where nobody has to leave their house if they don’t want…[Read more]

I’ve always been a very avid reader also. When I had to stop reading actual books, the Kindle and its apps had not been developed yet, so I was heartbroken to lose my favorite pastime. I used to read anything from books to newspapers to magazines – whatever I could get my hands on. Yes, it was a depressing time without my dear friends of the l…[Read more]

We like to make all kinds of peas & beans in the crock pot. Our most recent was black beans with onions & green bell peppers & spices. We then serve it over rice. I can’t chew the meat very well, but Jack likes andouille sausage in it also. It gives the beans a good flavor. A few weeks before that we made lentil stew. It’s pretty much lentil soup…[Read more]

Thanks for bringing this up Lupa! I had gotten it confused with Zolgensma, so I was thinking it would be a one time deal. Hope I didn’t confuse anyone – except myself, lol.

I’m so glad you brought this up DeAnn because I have an appt also with my new neurologist here in Florida on Dec. 10. Like you, I have Medicare as my primary insurance, but mine is straight Medicare, no advantage plan. I also have Blue Cross Blue Shield from my former job as a Fed employee which covers what Medicare doesn’t pay & it covers all my…[Read more]

I was so very sorry to read your post tonight, DeAnn. I’ve had pets for as much of my life as I can remember, and they have always been a very special part of our family..My husband & I have been thru a couple of dogs in our 22 year marriage, and each death has been just as heart-wrenching as the others. I’ve never had a service dog, but I can…[Read more]

Olga,

I’m sorry to hear your brother can’t have the Spinraza injections as he would like. I’ve also had a spinal fusion that put lots of pieces of bone in my back, along my spine to make it grow straighter. Because of this, any kind of injection in my back is next to impossible. Drs. have tried before to do epidurals and cortisone injections with…[Read more]