Kelly Miller

I hear ya, Rachel! Last night my husband & I made dinner (I’m the “chef” of the operation & he’s the muscle.) He dished out my plate of sautéed shrimp, risotto, & brussels sprouts then set it on the table in front of the TV. I got to look at it while he got the bread out of the oven, fed the dog, washed the shrimp pan, poured our drinks, & dished…[Read more]

So the shows that have been keeping me going this summer are The Handmaid’s Tale on Hulu & Euphoria on HBO. To lighten up the mood, I regretfully admit to my addiction for reality shows; Big Brother is always a summertime go-to. However, I don’t have a whole lot of time to watch TV since I have about 200 Kindle books to read, and I add new ones…[Read more]

Crystal, you don’t look any skinnier than me, in fact you might be a little bigger. You’d be surprised how small or how well they can adjust anything you want to get. If it’s 1 of your dreams, go for it! Like I said, I have several & none have ever gotten infected or made me sick. Just make sure you go to a place where you’ve gotten a referral…[Read more]

Ryan, congrats on your new tattoo! They are addictive, making it very difficult to refrain from getting more after that first one. What all do you have? Where on your arm did you put them?

I never had lidocaine put on my skin before getting mine. I have 7 spread out on all 4 arms & legs. I have an ankh (cross with the loop at the top – Egyptian s…[Read more]

I don’t know if you don’t eat meat bc you can’t chew it or bc you are somewhat of a vegetarian, so my input might not be relevant to you. I do have a feeding tube in which I use Real Food Blends. They have different versions of meals with meat in them, but they also have vegetarian versions. Since it’s puréed to go in the feeding tube, you don’t…[Read more]

Brianna, I think your link to the column didn’t work for some reason. I found the article you were talking about of Alyssa’s, so here’s the link:

I Wish That Living with My Complicated Kind of ‘Normal’ Were Easier

Lately, the thing I’m having trouble expressing to others is the frustration & fear I’m going thru regarding…[Read more]

Halsey has explained how I feel & worship God to a tee! While I don’t think He causes me to suffer things like pain, illness, & not being able to walk or do things for myself, I do believe He allows me to have this life in order that I will be uniquely qualified to minister in whatever way to people that is needed. I have never been 1 of those…[Read more]

This same thing happened to me, and eventually I lost the use of my hands altogether – no more feeding myself, no more driving my chair with a joystick, no more writing. But as a person with SMA often does, I used my stubbornness & ability to fight for what I want. I researched & called all sorts of wheelchair providers, and I found out that I m…[Read more]

Halsey, good to know about the padded foot rests! I haven’t been able to wear shoes in over 5 yrs. because of the pain they were causing my feet. I just have too much water retention & poor circulation in my feet to be able to find a pair of shoes that fit right and then look right. I buy all kinds of different colored & styled socks, incl 6 pair…[Read more]

Thank goodness Ryan, you were already at home when everything happened, altho I’m guessing having to stay in bed longer was a pain – maybe in more ways than one :-). I’ve run out of power before from dead batteries and had to be pushed all the way back to the car thru the grass at a festival. It wasn’t pleasant for sure on the person pushing! I d…[Read more]

Like you Deann, my parents were also given an age by which I was supposed to die. Mine was 5 yrs. old. I will be 56 this coming Sep, and I get mistaken all the time for 30-something. I have been extremely blessed & fortunate to not yet need a BiPAP or vent in spite of some very horrific bouts with pneumonias. I use a cough assist now whenever I do…[Read more]

Personally, I don’t think that you responded inappropriately at all Deann. I mean, there have been many times that people have offered me things for free or paid for mine & my husband’s dinner at restaurants, and I’ve responded in much the same way as you. I’ve tried to turn down whatever the gift was in the past and it’s only made things more…[Read more]

Oh my gosh, I can TOTALLY relate to what she says in this blog! I hold on to my chair as long as I can, sometimes making it last 12+ yrs. before I even think about calling the DME. It’s such a stressful situation, and then the waiting period from when you get all the paperwork to the wheelchair company, after it’s been approved by insurance, to…[Read more]

Hi Izzy, nice to meet you. I dabble in sci-fi but not nearly at the fan on level of y’all probably. It’s really my husband who loves everything science-fiction. I’ve read a lot, but my thing is more fantasy than sci-fi.

So, you must be doing something great healthwise to be an older person with type I. And, by older, I mean more than 18. What’s…[Read more]

This one is the one I use at home & when we go somewhere. It’s not foldable (except the leg/foot rests come off), but it wheels very nicely & you can get laterals or anything else you need on it. The seat is kind of hard & uncomfortable, but I got a gel overlay for it, & it’s much softer. Don’t go into shock when you see the price tag – i…[Read more]

I use a Dragon Naturally Speaking ext. to make some sites easier for Dragon to work with. Unfortunately, there are developers who just don’t care about accessibility, so their websites have parts that I can’t get to do anything (Facebook & Instagram, as a matter of fact!) One in particular is MICROSOFT EDGE (the proprietary browser that likes to…[Read more]