Forum Replies Created

  • dan-dan

    Member
    April 15, 2018 at 2:54 pm in reply to: Has Spinraza lived up to your expectations?

    how many injections did you get till now? did you notice any change with your power or functions until now?

  • dan-dan

    Member
    April 12, 2018 at 1:37 pm in reply to: Effects on Adults with SMA

    DeAnn, did you notice any increase of protein in your spine fluid and/or in your Urine?

  • dan-dan

    Member
    March 27, 2018 at 1:12 pm in reply to: Effects on Adults with SMA

    Hi DeAnn, since your last apdate about your situation is from last month, can you tell us if you can see any improvments yet? I am a type 3 who is interested to try spinraza.

    TNX

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