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Has Spinraza lived up to your expectations?
- As an adult with SMA I wasn’t quite sure what to expect when I started Spinraza. After all most of the studies were done on infants and children. Trying my best to keep my expectations low, in the back of my mind I kept thinking of things I wished maybe I could do again. Nothing major, I know walking isn’t on the table. Could I possibly lift my arm onto the armrest again? Would my head not fall back when someone hits the gas too fast? Questions like this wouldn’t be answered until I had access to Spinraza. Now that I’m on Spinraza the answer… not yet. Yet being the key word. Changes have been subtle, but I have to remember it took 38 years to get where I’m at. It’ll take time. I have to admit being patient is difficult, however I feel very fortunate to have the opportunity. The opportunity to stop the progression, the opportunity to improve and the opportunity to share. Has Spinraza met your expectations?
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