DeAnn R

Relying on others is probably my least favorite aspect of SMA.

It certainly wasn’t her intention.  I brought it up later, and she understood why I didn’t appreciate the humor.

Thanks for understanding Halsey.  We have had caregivers come to her house in the past, mainly when Mom had an injury, but she’s not really comfortable with it.  When the time comes I’ll probably have to just stay at my house and just maybe go out there for the day or find more activities to do at my house.

Hola Andres! That’s all I know in Spanish. Welcome. Good to have you with us. If you don’t mind my asking, as type 3 do you still walk? Just curious. I find the range of abilities with SMA fascinating.

To be honest I probably wouldn’t recognize everyone who has been my caregiver at one time or another I’ve had so many.  I can’t say I’m actually “friends” with any of them.  More “friend-ish” I would say.  Even the ones I’ve had for years.  There are a select few that have left that I actually keep up with and keep up with me.  Maybe with a Chri…[Read more]

As far as I know the thing about traditional Medicare is that they don’t do prior approvals for this type of thing.  From what I understand the hospital has to do “Buy & Bill” which can be risky for them especially if they’re a smaller institution.  Since it is being covered though more places are willing to do it.

Has coverage been your main h…[Read more]

My Medicare covers it.

Love the thumb hole shirt tip!  I struggle with layers for just that reason.

How do y’all avoid getting sick when you go out?  It seems like when I do more activities I end up catching a bug.  It doesn’t stop me from doing stuff, but I’m much more hesitant.

Great column!  Yes, everyone is different, but sharing our stories shows all the various options out there.  Even though it’s sometimes difficult for our parents to take a step back, I think it’s kind of reassuring for them in the long run that if something happens to them you’ll be alright.

It’s always difficult to take those first steps b…[Read more]

It’s great Alyssa has this special connection to her beloved team.  Although I enjoy tuning into the games (Go Vikes!) I kind of have the opposite reaction when football season arrives.  It means I have to dig out my long sleeves and fuzzy socks.  It means the days are getting shorter.  It means cold and flu season will be upon us.  Sometimes I wo…[Read more]

For the last half of the book, I’m not going to give you a chapter play by play.  I’d rather just give you an overall idea of where the book is headed.  Let’s just say it includes no less than sex, drugs and scandal.  Okay, maybe living with someone before you’re married these days isn’t exactly scandalous.  Although there was a marijuana sto…[Read more]

I gave up on physical books long ago. Every day though something comes up that I just can’t do. Many times I spend way too much time trying anyway, sometimes successfully, sometimes not. Other times I just forego it until someone can help me. It’s certainly frustrating.

Interesting info!