DeAnn R

Going through the process to receive a successor service dog allows me to reflect. Last fall I celebrated my 40th birthday. Honestly I didn’t know if I’d ever see that milestone. Born with the leading genetic cause of infant death, my parents were told I’d be lucky to live beyond 3 when they found out I have SMA. Each and every day I excee…[Read more]

While hibernation isn’t new to me, it is for my family. In fact I think this is the longest my nieces have been out of school. Exception being summer vacation. Since I’m avoiding contact with them I’m still trying to help entertain them somehow and stay connected. Yesterday I started a text game where I texted an animal. Then the next person…[Read more]

https://www.youtube.com/watch?v=_lulIr0zgQU

Hey everyone! I hope everyone is staying healthy. In this episode of Dose of DeAnn, I’m talking about the COVID-19 outbreak and what I’m doing to be prepared. During this stressful time, it’s important not to panic. Despite being nervous about COVID-19, I’m really not changing my actions a whol…[Read more]

Laughing at My Nightmare is offering financial relief to those with disabilities burdened by the coronavirus. Therefore if you qualify you could receive a $100 Visa Gift Card to be used for self-isolation and quarantine expenses. Find out more here.

I don’t know if it’s the same for everyone, but I get attached to things that work for me. For instance I love my cell phone. Not only is it a good size, the weight is workable too. Aspects not every cell phone user care about. After four years I even found a case for it that doesn’t hinder its operation. As my phone started acting up I got…[Read more]

Within the last couple weeks I see the world adjusting to a new “normal.” Ironically it’s not such a big change for me. While social distancing and isolation isn’t new to me, it is new to many. I happen to call it hibernation. Although I’m disappointed my hibernation is being extended, I get it. As a “high risk” individual COVID-19 is…[Read more]

More often than not when I talk with someone over the phone or online my disability doesn’t come up. If I need to disclose it I will, but otherwise I don’t find it’s pertinent to the conversation. In Halsey’s recent column she talks about her volunteer work at Turnstone. I like her decision making process when it comes to sharing she has SMA.…[Read more]

As I’ve said the Novel Coronavirus, aka COVID-19, has me on edge.  In my opinion knowledge is power and may prove to be the best defense.  That’s why I want to share this link from the MDA on COVID-19 resources.  Included is a lot of practical information that can be helpful.  It seems like there’s a lot of misinformation floating around tha…[Read more]

As you may be aware Roche/Genentech’s treatment risdiplam is under FDA review.  Some speculate a determination could come sometime in May.  Regardless of the timeline anticipation is growing.  Namely because this is the first oral medication to treat SMA.  Because of this I for one will be watching with bated breath for the announcement.  I’ve…[Read more]

Spring is right around the corner! Inevitably, with warm weather comes insects. In anticipation, I’m getting prepared for bug bite season by making bug bite balm in this video.

As I was perusing Pinterest, I found a recipe for it. Since I had all of the essential oils, I thought I…[Read more]