[federica-borsi]

Hello!
I’m federica, I’m 22, type3. I’m italian. I would like to know if there is any adult among you who received Spinraza even though he has a fixed spine?
in Italy, due to bureaucracy and politics, doctors administer Spinraza only to children, but spinraza is also approved for adults. Italian doctors are afraid to do Spinraza to adults so I would like some contact of American neurologists to ask more informations.
I would like to know from the adults who received Spinraza the side effects and the beneficial effects.
I apologize for my bad english.
best regards

[federica-borsi]

Hello!

I’m Federica, I’m 22, type3. I’m italian.
I joined this forum because I would like to discuss with you, to exchange information about drugs, gene therapy, daily life, medical assistance and treatments.

I apologize for my bad english.

best regards