Biography

Name

Jennifer Lewis

Nickname

jennifer-lewis

Year of Birth

1967

Gender

Female

Location

Milford, Ohio (outside Cincinnati)

Relationship

Patient

Short Bio

So, what should I say about myself? Well, my sister (who passed away in 1996) and I were diagnosed with SMA 3 when I was about 2-years old. Robin was far weaker than I was and was always getting pneumonia. She ultimately died from heart failure. Needless to say, that’s why I’m perpetually thinking I’m having a heart attack. Because of my anxiety I take Zoloft and Xanax ER. I have an amazing human being of a boyfriend that I’ve been with for many years. We met on Facebook, surprisingly enough. He’s a “normie,” but I don’t hold that against him. I live with my parents in a condo. They are two incredibly wonderful parents who have made my life far better than you could imagine. Lastly, I have two BA’s from Wright State University (English and Psychology) and I worked in sales/customer service for 21 grueling years. I’m now on SSDI.

SMA Type

Type III

How did you hear about us?

Other

How long have you or the person that you are caring for had SMA?

49 years

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