Biography

Name

Jay Pateakos

Nickname

jay-pateakos

Year of Birth

1970

Gender

Male

Location

Marion, MA

Relationship

Caregiver

Short Bio

My son Alex was diagnosed with SMA Type 1 in October of 2004.  He was given about two years to live but here he is, just about to go into high school.  We cherish every day we have with him.

SMA Type

Type I

How did you hear about us?

SMA News Website

How long have you or the person that you are caring for had SMA?

14 years

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