Forum Replies Created

  • julie-richie

    Member
    March 21, 2018 at 10:16 am in reply to: Intoduction

    Hi, My name is Julie and this my first time to write anything on a Forum or whatever this is.  Please forgive and teach me if I’m breaking some sort of etiquette on here.   I am 51 years old and have Type III.  I work full-time and then some and am married and have two adult children.  It is assumed that my grandfather had SMA but he was never diagnosed.  I have no other family that has it.  I am ambulatory but mobility is declining.  Or was.  I am have had 3 of my loading doses.  I am already seeing improvements!  My stability while walking has improved and so has my speed.  I have experienced several of the side-effects of the Spinraza but it’s worth it to see the improvements so clearly.