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Hey everyone. My name is Mike Huddleston. I’m 54 (exactly when and how that happened, I’m not sure!), married with no children, and still work full time as a Systems Analyst. I live in Maryland, closer to Baltimore than DC.
I was diagnosed with Type 3 via muscle biopsy back in 1979 at the age of 16, although I was symptomatic for several years prior to this. I am the youngest of 5, and the next two older siblings also have SMA, although they were symptomatic at much younger ages. I was ambulatory, at least by some definition, until 2015. I have been approved for Spinraza and am working with Dr. Crawford at Hopkins. I will be treated at an offsite facility due to some goofiness in budgeting, and they are currently finalizing those details. I will be either his second or third adult Spinraza patient and when we spoke last week, he said hopes to start the loading doses in March.
Looking forward to interacting with others here.