Mike Huddleston

Glad to hear it went well, Kevin.  I have my first maintenance dose (#5 overall) at the end of October.  I was only a little apprehensive prior to my initial dose.  That one was a little rough as although they had fluoroscopy available, they opted not to use it initially.  The other 3 went much better as they utilized the fluoroscopy, so my exp…[Read more]

Hey Kevin –

Good, positive  attitude!  Good luck!  Looking forward to hearing how it goes.

Michael, you live in Texas, so perhaps you get enough naturally in the sun?  🙂

Mine was low for the first time in regular blood work for my annual non SMA physical maybe 4 or 5 years ago.  I take an OTC 2000 IU supplement daily and it’s been fine ever since.

Kevin, re: “new study says milk will kill you”, first of all, very funny.  Se…[Read more]

Hahaha!  Priceless video!

Interesting article DeAnn; thanks for posting.

Hey Lisa, sorry it didn’t work out for you yesterday.  I’m 55 and have finished the 4 loading doses and first maintenance is late October.  Let me know if you’d like to talk?  Be glad to help assuage or talk through any concerns you may have.

That’s hilarious Michael!  Thanks for sharing that.

I’d have to agree with Michael, oh about 125% on this one. First of all, have a sense of humor about yourself.  That will let people relax and be more of themselves around you.  No one wants to feel like they’re walking (or rolling) on eggshells.  They don’t have to be relatable to your situation to find common ground.  I mean, we share sim…[Read more]

Wow, very similar high school experience.  I mean, I was not exactly a jock, being diagnosed when I was 16 but knowing “something” was wrong a year or two before, but even not being a jock, it was obvious I was having issues.  The school I attended had three floors, so stairs became a bit of an issue in my junior and senior years.  And kids th…[Read more]

Hey Ryan –

I’m a Systems Analyst.  Well, actually a lead with 10 people reporting to me.  But this type of work allows us to use our brains while not requiring much, if anything, in the way of physical strength.  Related fields could be a business analyst, a developer, or database related work.  I typically go into the office 3 days a week and…[Read more]

Thanks for posting that link, Kevin.  I haven’t dug through all the archives but there is a treasure trove here.  What a well written article.  I would say, “you’re an inspiration”, but not sure how you’d take it?  Buwhahahahaha.  Sorry, yes, I had to go there.

That just hurts my brain and my heart.  Ugh times about 100.

Well, forgive me in advance as I’m typically a little cynical about these type of things.  But I’m also a 40+ year patient, which is a bit longer than many here have been alive.  IMO, our compassion for others is what this kind of thing is about, but those of us with a disability seem to already have a certain amount of that as we know what s…[Read more]

And a correction.  My PT just e-mailed me and corrected the Hammersmith score from 21 to 19.  Math error.  🙂

Hey DeAnn –

Got back from the reassessment a little while ago.  It went well.  And, yes, it was the same person.  My 9 hole pin timed test (they have a name for it but I don’t remember it) improved by about 4 seconds on each arm.  And the Hammersmith evaluation score went from 15 to 21.  It was really humid today and I had shorts on and kept stic…[Read more]

Really clear explanation.  Thanks for posting the video!

3 points in one assessment is huge, as is 8 overall!  This is excellent news to hear and I’m happy for you! Congrats!

I’ve felt the effects of the needle hitting a nerve channel (or whatever), but it usually just radiates a little – never down to my toes.  I have my first re-assessment on 7/24.  For some reason, I’m a little nervous about it.

Nice video Michael!  I posted a reply under my youtube username (not sure where that came from, but apparently it’s several years old!!), ekim21144.  🙂