[monika-lemeshonok]

<span id=”result_box” class=”” lang=”en”><span class=””>I have  weight of 24 kg and I’m 32 years old, I never worried from it because it does not bother me.</span> M<span class=””>y neurologist said that I should not increase my weight, because the fat mass will put pressure on the my bones and scoliosis and it will be badly.</span> <span class=””>And I do not want to change myself.</span></span>

[monika-lemeshonok]

Hi, everyone!

My name is Monika, I am from Belarus, have SMA 2 type, I am 32 years old.  I am artist, all my life I like painting, art it is my life. I have art exhibitions in differents european country. I am believe in miracle and I want find good treatment.

Thanks for this forum!

 

[monika-lemeshonok]

Kyrie, tell me please, already allowed combination therapy such as gene therapy + spinraza or<gene therapy + Roche. I also have type 2 sma and I hope that in the future gene therapy will be available for adults with type 2. Maybe could you give email contact of doctor who knows about the availability of Zolgensma for adults?