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Robert Stump replied to the topic Finding Love in the forum Adults With SMA 3 months, 2 weeks ago
51 years old heterosexual cis male here, struggled my entire life with finding a mate. It doesn’t bother me now, but in my late teens and 20s and even into my 30s I was extremely upset about it. Looking back, I believe what held me back was my own shyness and my fixation on un-obtainable individuals. I took rejection so personally and I always…[Read more]
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Robert Stump replied to the topic Coughing Up Phlegm in the forum Adults With SMA 5 months, 1 week ago
Weirdly, I struggle more sitting up nowadays, even though for almost my entire life it has been worse when lying down. Ever since starting Evrysdi back in September 2020, I struggle coughing up my own phlegm without help, sometimes to the point where it’s dangerous. But, at the same time, if I lay down and roll to my left side, a cough almost n…[Read more]
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Robert Stump replied to the topic Alfamino Formula (AA Diet) in the forum Adults With SMA 6 months, 1 week ago
Alyssa, no I have never heard of this diet but I was curious if you’ve ever tried Soylent? It is much lower in sugar than anything else I have found, blends quite smoothly, and seems to have a pretty rounded nutritional portfolio. The only thing I add is a daily liquid multivitamin, extra vitamin D, extra potassium, and extra non-soluble f…[Read more]
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Robert Stump replied to the topic Anyone have a Google Pixel? in the forum SMA Assistive Technology/Equipment 6 months, 4 weeks ago
I don’t have one, but I try to keep up-to-date on the new features they build into these things (some of which eventually trickle down to other android phones). Here are the newest features I know about:
‘Assistant voice typing’ in Gboard lets you dictate, edit text hands-free
https://wp.me/p9SZ9T-1VR4‘Quick phrases,’ enhances At a Glance…[Read more]
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Robert Stump replied to the topic Talking On the Phone in the forum Adults With SMA 7 months, 2 weeks ago
I second Blake’s observation about a good quality PC microphone to make telephone calls. With Skype able to call landline numbers and Google Voice making PC calls to regular telephone numbers as well, I usually wait until I can call from my PC if the telephone call is important.
Otherwise, I may just have one of my aides make the call for me and…[Read more]
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Robert Stump replied to the topic Hand Falling Off Joystick in the forum SMA Assistive Technology/Equipment 8 months ago
I use one of those micro joysticks with an index finger with my palm resting on a hard flat shaped pad, and yes it is very difficult to keep it just in the right place when going over any bumps in the roadway. It is frustrating.
To fix this problem correctly, one day I plan to put some really deep grooves into my pad so my hand sits down into it…[Read more]
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Robert Stump replied to the topic Update on New Wheelchair in the forum SMA Assistive Technology/Equipment 9 months, 3 weeks ago
My Invacare chair is way too tall for most restaurant tables, and since I rely on others to feed me it always seems like they have to reach so far up to get to my mouth it’s ridiculous. So, I actually like sitting at the bar height tables and raise my chair up with the elevator so my head is at the same height as everyone else’s 🙂
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Robert Stump started the topic New Apple accessibility features in the forum Adults With SMA 12 months ago
I’m glad that companies are finally getting serious with accessibility in their products. I still find android phones more customizable for my particular needs at this point, but Apple is trying hard to pry me loose. Check out these new features coming sooner or later this year. For me, the most useful ones seem to be eye tracking for the iP…[Read more]
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Robert Stump replied to the topic Advice On Self-love? in the forum Adults With SMA 1 year ago
Not the discussion I was expecting after reading the title, but a good one nonetheless. 🙂 For me, I feel it’s just honestly. We each have our own hangups about how other people look, so it’s understandable that we know deep down that others looking at us probably feel a certain type of way. But, we can’t know what is in their heart, but we…[Read more]
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Robert Stump replied to the topic Columnist Writes About Second Vaccine Shot in the forum Coronavirus (COVID-19) and SMA 1 year ago
Oh yes, Pfizer #2 got me good. Down for the count for 48 hours, fever, nausea, very intense headache (and I almost never get headaches that last more than the morning Cup of Joe), and weakness. But, I’m glad I did it, and I feel so safe being around strangers again. I still mask up indoors like a good comrade, and I might do so for the rest of…[Read more]
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Robert Stump replied to the topic Columnist Writes About Throwing Away Her Vaccine Shot in the forum Coronavirus (COVID-19) and SMA 1 year, 1 month ago
My 2nd dose of Pfizer was delayed because I felt like I was coming down with something on the day I was originally scheduled for, but it was an easy process to reschedule it and I took it this past Saturday. It hurt some, the first one didn’t, and my arm was sore after 5 or 6 hours. But the next day, about 20 hours after the shot, the side e…[Read more]
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Robert Stump replied to the topic Multivitamin Recommendations in the forum Adults With SMA 1 year, 2 months ago
Because my diet is pretty limited, I started taking a multivitamin about 15 months ago, and now I am doing daily vitamin D supplementation as well. I have to admit I do feel better after having started taking both of them daily, and when I tried to stop I noticed a drop off in energy and excitement for life. So, I guess now I am stuck!
Due to m…[Read more]
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Robert Stump replied to the topic Social Media Follow Thread in the forum SMA Forums Welcome Lounge 1 year, 3 months ago
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Robert Stump replied to the topic Vaccine? in the forum Coronavirus (COVID-19) and SMA 1 year, 3 months ago
Ohio is putting us further back in line. Earliest that I MIGHT be able to try to get one will be 2nd week of February, and I’m frustrated.
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Robert Stump replied to the topic Adaptive Sports in the forum Adults With SMA 1 year, 4 months ago
Bowling is pretty easy to adapt, using just one of those stationary rails or getting one that can attach to your wheelchair. The off-the-shelf design of the Ikan Bowler comes to mind, or you can do what I did and hire a local welder to create your own. I have been bowling competitively in a standard weekly league for over 20 years, and my h…[Read more]
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Robert Stump replied to the topic Adaptive Sports in the forum Adults With SMA 1 year, 4 months ago
With enough ingenuity, many other sports can be adapted. I’ve always had dreams about making a device to allow me to play billiards. I have no doubt someone could easily design a variably powered shooting stick attached to a wheelchair (preferably one that can elevate). Likewise, I remember playing a version of HORSE with my brother and da…[Read more]
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Robert Stump replied to the topic Electronic Visit Verification in the forum Adults With SMA 1 year, 5 months ago
We have had it here in Ohio for most providers for over 2 years. It is a pain, and seems like one more unnecessary step to discourage workers from entering this field. I pretty much manage the billing for all of my providers anyway to keep them happy and free of the nonsense, so helping each of them set up EVV and helping manage everything for t…[Read more]
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Robert Stump replied to the topic Voice Access on Android 11 in the forum Adults With SMA 1 year, 5 months ago
Actually, even better news. Google went ahead and released this new functionality for any phone running Android 6 and above. It won’t work as smoothly on older hardware, but I just tried it out on my Moto X4 running android 8 and it looks like all of the functionality is there. Of course, my voice isn’t near as clear as it needs to be to ma…[Read more]
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Robert Stump started the topic Voice Access on Android 11 in the forum Adults With SMA 1 year, 5 months ago
I just came across this new functionality supposedly available on the newest android operating system. It is a greatly improved version of the accessibility feature called Voice Access which lets you click on things and interact with the phone just by saying numbers and certain phrases. This new update looks to be a game changer. Un…[Read more]
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Robert Stump replied to the topic World of Switches in the forum SMA Assistive Technology/Equipment 1 year, 5 months ago
DeAnn, that is the Micro Light Switch, one of the most sensitive switches out there. I love those things!
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