Michael Morale

Hey everyone! Hope you’re all having a great week so far.

Check out the latest episode of the Morale Monologue here. Recently, Biogen Pharmaceutical’s decided to conduct a study to possibly increase the dosing amounts of Spinraza. This study will look at the effects of increasing the dosing amount for those of u…[Read more]

In this episode of the Morale Monologue, I’m sharing an email that I received from one of my subscribers to my personal YouTube channel. My subscriber asked how I continue to remain optimistic while living with SMA. I give her my reasons regarding my optimism and enthusiasm, and I’m sharing this with you in the hop…[Read more]

Happy October everyone!

In this episode of the Morale Monologue, I’m sharing a video that I did for my physical therapist, Emily. Currently, Emily and I are working on a series of articles and videos for the SMA News Today HCP site. This healthcare professional website is designed for physical therapists, d…[Read more]

Hey everyone! Hope you all are having a great week so far.

In this episode of the Morale Monologue, I’m sharing my opinions that I gave to one of my subscribers to my personal YouTube channel. This person was having issues with a doctor, and I wanted to address these issues.

I did a video a while back a…[Read more]

Monday, Sept. 2, Through Sunday, Sept. 08 – With everything that I’m doing at BioNews Services, along with my physical therapy schedule, and everything else that I have going on in my life, this was an extremely busy week. I’m currently working with a doctor who specializes in pulmonary rehabilitation, so we can get his podcasts started for…

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In this episode of the Morale Monologue, I’m sharing some information that was recently announced during the Cure SMA webinar, that was held on Wednesday, August 28, 2019. In this webinar, Cure SMA had representatives from AveXis Pharmaceuticals and the FDA. They discussed the most recent information regarding Z…[Read more]

Monday, August 26, Through Sunday, Sept. 1 – Have you ever had one of those weeks where everything seemed to be in the wrong place just because you had to rearrange one meeting or event? My caregivers came back from vacation on Thursday morning, so I had to move my workout with Emily from Tuesday to Thursday afternoon. When Tuesday came, I felt…

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What a crazy and hectic week! My caregivers that live with me left on Tuesday for their family vacation, and I have a temporary caregiver living with me until they return. Last year, I had a bad experience with the temporary caregivers that I used. When my caregivers returned from their vacation, I was admitted to the hospital two days later…

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In this episode of the Morale Monologue, I share a video that I produced for my physical therapist, Emily. Over the past year, Emily has been working to stretch the muscles in both of my hips.

For those of us who sit in wheelchairs for the majority of the day, these muscles in our hips tend to get tight and sore…[Read more]

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Weekly Journal 8/5/19 through 8/11/19 – While I was hoping for an easy week, it ended up being full of activity and not much excitement. I did take a day of vacation on Friday. Thursday was my birthday, and I wanted to relax a bit. Trying to cram five days worth of work in the four days presented challenges. Still, I refused to let these…

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In this episode of the Morale Monologue, I discuss the proper techniques to transfer a person with SMA out of their wheelchair. I’ve been doing physical therapy for the past two years. Every other week, my physical therapist and her assistant transfer me from my wheelchair to the therapy table. Physical therapists l…[Read more]

Monday, July 29, Through Sunday, August 4 – I got so much done this week, it felt as if I had 30 hours in each day, and had eight days in the week. I guess that’s one of life’s mysteries that none of us will ever be able to fully understand. Why can we get so much done one week and then feel that we get nothing done another? It’s been just…

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Monday, July 22, Through Sunday, July 28 – Overall, this was a great week. I completed quite a few work projects, and everything went smoothly. I ate well, got some good rest, and my body feels great. Other than a little bit of discomfort in my right hip, which I’ll talk about in just a moment, it was a pretty uneventful and smooth…

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Monday, July 15, Through Sunday, July 21 – This past week was smooth and non-eventful. The only time that I left the house was when I went for my workout. Besides this, I spent the majority of my days working on podcasts, flash briefings, and trying to restructure BioNews Services’ multimedia and social media platforms. Work is keeping me busy,…

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In this episode of the Morale Monologue, I share my tips and tricks on how to avoid getting a headache after one of your Spinraza injections. Headaches are a normal side effect with any intrathecal or spinal cord injection, and the tips that I’m sharing with you, will possibly help you to avoid g…[Read more]

Monday, July 8, Through Sunday, July 14:

This week started out with a bang, and it got better as the week went on. On Monday, July 8, I went back to UT Southwestern Medical Center for my fifth maintenance dose of Spinraza. It’s hard to believe that I’ve now had nine injections, and it shocks me how fast the time has flown by. This was…

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