Michael Morale

In this episode of the Morale Monologue, I’m discussing how those of us with SMA can stay safe during the Coronavirus (COVID19) concern. Those of us with SMA already have compromised immune systems in lower lung functions, and we need to be extremely careful over the next couple of m…[Read more]

In this episode of the Morale Monologue, I’m discussing another biopharmaceutical company by the name of Scholar Rock, and their potential treatment known as SRK-015. I discuss how SRK-015 impacts our body, and how it differs from Spinraza, Zolgensma and risdiplam. While it may be over a year before this potential t…[Read more]

Over the past 10 days, we’ve all seen an unimaginable amount of information regarding the Coronavirus. While some are staying calm and being rational with regards to keeping themselves safe, some have gone to the store and began stockpiling for what they may think will be a six-month lock-in.

While doctors and researchers tell us that 80%…[Read more]

In this episode of the Morale Monologue, I’m discussing two important questions regarding risdiplam. Those of us that are receiving our Spinraza maintenance doses get these injections every four months. Quite a few people have said that they experience a lethargic feeling as they get closer to their next i…[Read more]

In this episode of the Morale Monologue, I’m giving you my opinions to questions that were asked regarding Roche/Genentech’s new potential treatment known as risdiplam. These questions dealt specifically with Roche/Genentech and our insurance companies, and I believe that these are questions that will need to be ans…[Read more]

In this episode of the Morale Monologue, I’m giving you some more great information regarding Roche/Genentech’s new potential treatment known as risdiplam.

Currently, risdiplam is under Priority Review Status by the FDA, and some of my subscribers and followers to my personal You…[Read more]

In this episode of the Morale Monologue, I’m discussing a new treatment for SMA that will possibly be available during the first half of 2020. Roche/Genentech was granted Priority Review Status, for their potential treatment known as risdiplam.

In my video, I go over a PowerPoint presentation explaining what r…[Read more]

Hey everyone! Hope you all are doing well. For those of you in the U.S., hope you all had a great Thanksgiving.

In this episode of the Morale Monologue, I discuss how my Spinraza injections are becoming another part of my routine. For those of us who are on this treatment, many of…[Read more]

Hey everyone! Hope you’re all having a great week so far.

In this episode of the Morale Monologue, I discuss how important it is to find a physical therapist to work with you. Finding a physical therapist that’s willing to work with an SMA patient can be challenging. I share wh…[Read more]

Hey everyone! Hope you’re all having a great week so far.

Check out the latest episode of the Morale Monologue here. Recently, Biogen Pharmaceutical’s decided to conduct a study to possibly increase the dosing amounts of Spinraza. This study will look at the effects of increasing the dosing amount for those of u…[Read more]

In this episode of the Morale Monologue, I’m sharing an email that I received from one of my subscribers to my personal YouTube channel. My subscriber asked how I continue to remain optimistic while living with SMA. I give her my reasons regarding my optimism and enthusiasm, and I’m sharing this with you in the hop…[Read more]

Happy October everyone!

In this episode of the Morale Monologue, I’m sharing a video that I did for my physical therapist, Emily. Currently, Emily and I are working on a series of articles and videos for the SMA News Today HCP site. This healthcare professional website is designed for physical therapists, d…[Read more]

Hey everyone! Hope you all are having a great week so far.

In this episode of the Morale Monologue, I’m sharing my opinions that I gave to one of my subscribers to my personal YouTube channel. This person was having issues with a doctor, and I wanted to address these issues.

I did a video a while back a…[Read more]

Monday, Sept. 2, Through Sunday, Sept. 08 – With everything that I’m doing at BioNews Services, along with my physical therapy schedule, and everything else that I have going on in my life, this was an extremely busy week. I’m currently working with a doctor who specializes in pulmonary rehabilitation, so we can get his podcasts started for…[Read more]

In this episode of the Morale Monologue, I’m sharing some information that was recently announced during the Cure SMA webinar, that was held on Wednesday, August 28, 2019. In this webinar, Cure SMA had representatives from AveXis Pharmaceuticals and the FDA. They discussed the most recent information regarding Z…[Read more]