Michael Morale

On Friday, July 3, 2020, I had to go to UT Southwestern Medical Center in Dallas Texas to be tested for the COVID-19 virus. This test was mandatory before my next Spinraza injection scheduled for Monday, July 6, 2020.

6 hours after my test, I received notification that my results were in my UTSW Patient Portal. Even though I was relatively…[Read more]

Hey everyone! Hope you’re all doing well. Check out my latest video here.

In this episode of the Morale Monologue, I discuss the importance of talking to your doctors about risdiplam. This oral therapy is extremely promising for those of us with spinal muscular atrophy (SMA). Currently, we expect the FDA to m…[Read more]

Hey everyone! Hope you’re all staying safe and healthy out there. 

Check out my latest YouTube video here. In this episode, I discuss key differences between two potential SMA treatments. The first is Roche and Genentech’s experimental therapy risdiplam, and the second is Scholar Rock’s therap…[Read more]

Hey everyone! Hope you’re all staying safe and healthy out there.

In this episode of the Morale Monologue, I discuss a recent decision by the FDA regarding Roche/Genentech’s experimental SMA therapy risdiplam. Recently, Roche/Genentech submitted additional data to the FDA to i…[Read more]

In this episode of the Morale Monologue, I’m discussing how I’m dealing with life while trying to avoid the Coronavirus. I share some of the things that I’m doing regarding keeping myself occupied, and I also share some helpful tips on what you can do to keep from feeling so isolated during these…[Read more]

With a community full of problem solvers the forums have become a place to share ideas that will brighten spirits during these difficult times.

Also, forums Director Kevin Schaefer reflects on past times of self-isolation, and how the one he’s experiencing now c…[Read more]

In this episode of the Morale Monologue, I’m discussing how those of us with SMA can stay safe during the Coronavirus (COVID19) concern. Those of us with SMA already have compromised immune systems in lower lung functions, and we need to be extremely careful over the next couple of m…[Read more]

In this episode of the Morale Monologue, I’m discussing another biopharmaceutical company by the name of Scholar Rock, and their potential treatment known as SRK-015. I discuss how SRK-015 impacts our body, and how it differs from Spinraza, Zolgensma and risdiplam. While it may be over a year before this potential t…[Read more]

Over the past 10 days, we’ve all seen an unimaginable amount of information regarding the Coronavirus. While some are staying calm and being rational with regards to keeping themselves safe, some have gone to the store and began stockpiling for what they may think will be a six-month lock-in.

While doctors and researchers tell us that 80%…[Read more]

In this episode of the Morale Monologue, I’m discussing two important questions regarding risdiplam. Those of us that are receiving our Spinraza maintenance doses get these injections every four months. Quite a few people have said that they experience a lethargic feeling as they get closer to their next i…[Read more]

In this episode of the Morale Monologue, I’m giving you my opinions to questions that were asked regarding Roche/Genentech’s new potential treatment known as risdiplam. These questions dealt specifically with Roche/Genentech and our insurance companies, and I believe that these are questions that will need to be ans…[Read more]