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Biography
Name

Thembelihle Lily Ngcai

Year of Birth

1994

Gender

Female

Location

South Africa

Relationship

Patient

Short Bio

My name is Thembi or Lily. I’m a 26 year old qualified journalist living in South Africa. Currently I work in public governance in my province.

I was born with Type III and it’s significantly worsened in the last three years – I’m finding myself again and figuring out how to navigate relationships while balancing work. My favourite place to be is in the pool- where I have hydrotherapy twice a week.

When I’m not traveling or hanging out with friends, I’m advocating for Inclusive Education,  undermining desexualisation of disabled people and writing.

SMA Type

Type III

How did you hear about us?

SMA News Website

How long have you or the person that you are caring for had SMA?

19 years

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