Yvette Haas

Hi, I don’t have much to offer in terms of whether or not it will provide any gains, as I’m new to the drug and have not noticed anything yet. I can, however, say that my biggest complaint when I began was that I started getting heartburn. For the first few days, it lasted for large portions of the day. The following week, it went to popping up…[Read more]

I was approved by Medicare within about ten days. If it makes any difference, I was not on Spinraza previously.

For me, it was the fastest and most logical way to get my insurance back after SS gave me 10 months of back-payments in a lump sum , which put me $6500 over my limit and the only guidance they were giving me was to pay for my funeral expenses (done years ago) and “buy clothes”. I’m the person who loves thrift shops and hates wasting money, so I…[Read more]

Deann, would you be able to message me on FB, or email, since I can’t seem to get this to let me know when others comment?

I was supposed to switch almost a year ago, but I plan to avoid it until absolutely necessary. The whole thing is going to make me really mad, so I’m’ silently protesting. The concept of taking several minutes, twice per shift, just sounds completely insane. Also, it’s going to seriously complicate figuring out how to put my Mom in the schedule. Uhggggg

Deann, yes, that is a Microlight switch, which is definitely a huge favorite for those who WANT sensitive. What size would you like it to be? Do you know where you will want it mounted?

I opened one last year. You do it all online and SS has absolutely no knowledge of the fact that ABLE accounts are even a thing. I spent a lot of time comparing all of the different states, and ended up choosing RI (which is probably slightly amusing to you).

Feel free to ask more or pm me< as I don’t always see things here.

Hi DeeAnn,

Yes, the options with switches are pretty much limitless. Is there any chance you could tell me which model he gave you, so I could get a better idea of what you consider too sensitive? That way I can make suggestions (or make you a switch).

As for the question about the laptop…. You should post that to the ATMakers group on FB. Lmk…[Read more]

http://www.sunny-side-up-designs.com/

Google Calendar is my best friend. Okay, maybe not my best friend, but it reminds me of everything.

I took my first dose a little over an hour ago, and I’m still here, but that’s definitely not a helpful update for you.

I can tell you that administering it is relatively easy, and the adaptor is simply because they give you Enfit syringes and you might not use Enfit extensions.

I was never on Spinraza, so I have nothing to compare it to besides…[Read more]

I’d suggest Bach’s Rescue Remedy. You can also get it in hard candies, but I prefer the ease of the spray (I don’t eat much by mouth)

I really love taking a few deep breaths of Olba’s oil. Sometimes I will make my own blends, but that one is definitely my favorite.

I know it wouldn’t help your whole body… But I LOVE the hand heater on my wheelchair! It’s a lifesaver.

I use the Pico mask https://www.usa.philips.com/healthcare/product/HC0022700/pico-nasal-mask

I do a nebulizer treatment every morning, while I still have my bipap mask on, before getting up for the day. I have been doing that for as long as I can remember… So probably for like 22+ years. I find that if I don’t do that, I feel like my lungs are not fully ready to function yet (honestly, though, I am not a morning person, so no part of me…[Read more]

I just commented about this on a different thread, so sorry for the duplicate, but I’m just going to copy and paste because the answer is the same:

Yeah… So my chair is somehow from 2001 (Yes, that 2001!) and still going strong. The other crazy part of this story is that I’ve been working on getting a new chair since 2011!!! It’s been the most…[Read more]

Yeah… So my chair is somehow from 2001 (Yes, that 2001!) and still going strong. The other crazy part of this story is that I’ve been working on getting a new chair since 2011!!! It’s been the most ridiculous process ever, but I’m happy to say that it’s fiiiiiiiiinally about 95% tolerable. I can’t even get into the issues, but basically, I’m…[Read more]

I’m surprised that you have so much trouble with reliably using the Tobii 4C. I have used the Tobii EyeX on a Surface Pro tablet for the past 2 years, and just upgraded to the 4C on Sunday. I love both of them (don’t see a huge difference between the two) and use it every morning while doing my breathing treatment, which now takes way longer…[Read more]

I just recently started flying again, after deciding that I couldn’t deal with flying with my wheelchair about 12 years earlier. My trick? I built (no, I designed… others built) a custom stroller that I can happily use for traveling. While this does mean that I lose some independence for 7-10 days, it also means that I can go to places that are…[Read more]