Forum Replies Created

  • zemo

    Member
    December 10, 2019 at 8:48 am in reply to: Going to the bathroom when you have SMA

    Hi everyone. I’d like to up the topic once again and hear your opinion regarding the external catheters.
    Like a lot of people in this thread, all my life I was transferred by someone else (mostly my family members) if I had to go the toilet. It was always annoying and awkward that somebody has to stay with me, but as Ryan wrote above – it wasn’t the end of the world.
    However, now I’m trying to get rid of this situation, bring more independency into my life as well as simplify the life of family members.

    I believe the most suitable way to achieve that would be an external catheter. But I wonder if somebody here has tried to use it with a valve instead of a leg bag? If so, what kind of valve have you used? Have you experienced any problem with that? I hope it doesn’t require a huge arm strength in order to open the valve.

    I see a lot of advantages in a valve. E.g. bladder is kept in shape, the risk of infection and leaks is less with a valve than with a leg bag, more confidence, etc. But there’s also a chance that I just overthink about all that advantages.

    Thanks for your answers in advance.

  • zemo

    Member
    December 10, 2019 at 8:46 am in reply to: Going to the bathroom when you have SMA

    Hi everyone. I’d like to up the topic once again and hear your opinion regarding the external catheters.
    Like a lot of people in this thread, all my life I was transferred by someone else (mostly my family members) if I had to go the toilet. It was always annoying and awkward that somebody has to stay with me, but as Ryan wrote above – it wasn’t the end of the world.
    However, now I’m trying to get rid of this situation, bring more independency into my life as well as simplify the life of family members.

    I believe the most suitable way to achieve that would be an external catheter. But I wonder if somebody here has tried to use it with a valve instead of a leg bag? If so, what kind of valve have you used? Have you experienced any problem with that? I hope it doesn’t require a huge arm strength in order to open the valve.

    I see a lot of advantages in a valve. E.g. bladder is kept in shape, the risk of infection and leaks is less with a valve than with a leg bag, more confidence, etc. But there’s also a chance that I just overthink about all that advantages.

    Thanks for your answers in advance.