31 Days of SMA: Sometimes Our Minds Are the Barrier — Not SMA
Photo courtesy of Ross Hovey Day 20 of 31 This is Ross Hovey’s (@thesmartchap_rosshovey) story: Having just turned 43, I’m reflecting on my achievements in life and the regrets I have,…
31 Days of SMA
Every day in August, we will feature a story from someone in the spinal muscular atrophy community to mark SMA Awareness Month. At the end of the month, our goal is to have a collection of stories that represent different perspectives on life with SMA that help to inspire and empower our readers. Follow along with the series here or visit us on Facebook and Instagram, using the hashtag #31DaysofSMA.
31 Days of SMA: How to Become Successful and Independent
From left, Kevin, Bryce, Drew, Judy, and Delaney Soule. (Photo courtesy of the Soule family) Day 31 of 31 This is Drew Soule’s story: Living with SMA is not for the faint of…
Read more31 Days of SMA: Here’s Why Diverse Representation Matters
Photo courtesy of Shailynn Taylor Day 19 of 31 This is Shailynn Taylor’s story: Hi! I’m a 26-year-old entrepreneur, university graduate, public speaker, and model, and I live with SMA type 2.
31 Days of SMA: Learning to Embrace SMA (Again!) in My Job Hunt
Photo courtesy of Madison Parrotta Day 18 of 31 This is Madison Parrotta’s story: From as early as I can recall, having SMA felt like being on the world’s largest Ferris wheel.
31 Days of SMA: Why I Have Vowed to Fight for Change
Photo courtesy of Kyra Richardson Day 17 of 31 This is Kyra Richardson’s story: Growing up with a SMA, I was often in and out of the hospital. At age 7, I…
31 Days of SMA: Why I Am Proud to Be Disabled
Carli Lynne Hamilton with her husband, Jared, and daughter, B. (Photo courtesy of Carli Lynne Hamilton) Day 16 of 31 This is Carli Lynne Hamilton’s story: I am Carli Hamilton. I was diagnosed…
31 Days of SMA: Living Through the Journey of a King With SMA Type 2
Zarek, left, and Zack Elizondo. (Photo courtesy of Zarek Elizondo) Day 15 of 31 This is Zarek Elizondo‘s (@sweetlifeofzackandzarek) story: Hi, my name is Zarek Elizondo. I’m 26 years…
31 Days of SMA: Having Such a Tightknit Community Makes All the Difference
Céline and Amber-Joi. (Photo courtesy of Amber-Joi Watkins) Day 14 of 31 This is Amber Joi-Watkins’s story: My daughter, Céline, was diagnosed with SMA type 1 in December 2018, when she…
31 Days of SMA: How I Use Superior Motivational Attitude to Achieve Happiness
Photo courtesy of Steve Bingman Day 13 of 31 This is Steve Bingman’s story: Society often tells us that those with disabilities have a predicted path of life. What society doesn’t tell you is…
31 Days of SMA: How SMA Made Me Into a Scientist
Photo courtesy of Ben Lou Day 12 of 31 This is Ben Lou‘s story: Hi, I’m Ben, a mathematician, physicist, and philosopher studying at MIT. I also have SMA…
31 Days of SMA: Being a Front-row Mom Is My Greatest Joy
Kristen and her son Jack. (Photo courtesy of Kristen Resendez) Day 11 of 31 This is Kristen Resendez’s story: As a mom, my favorite time of the year is the Cure SMA…
