We are honored to partner with nonprofit advocacy organizations to amplify their missions, share helpful resources, and ensure patients and families have access to information that supports everyday decision-making. The information featured below was provided by our advocacy partners as part of this collaboration.
"FundAME is a non-profit organization created in 2005 by relatives and patients with Spinal Muscular Atrophy (SMA) with the aim of finding a definitive cure for this disease. Their aim is generate knowledge supporting national and international research projects and developing our own lines of research, accelerate translational research pathways, bring effective therapies to patients, defends the rights and needs of the SMA community, encourage optimal care, spread knowledge on SMA."
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions.
SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. We work to bring effective treatments and optimal care to everyone living with SMA. Together, through greater understanding, we will create a better world for all those living with SMA. All together. One goal.
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