Columns

November 6, 2019November 4, 2019

The November We Set Our Angel Free

Columns, We're Not in Kansas Anymore - a Column by Helen Baldwin

The month of November kicked off eventfully in 1997 in the wee hours of the morning when our electricity went out. Jeffrey, our 5 ½-month-old baby with spinal muscular ... Read more

November 6, 2019November 4, 2019

Casten Kids Make the Most of a Cold Halloween

Columns, Five Servings of Strength- a column by Michael Casten

The winds howled and the blustery snow started falling early in the day. It was an unusual sight for the last day of October — Halloween. The city was ... Read more

November 5, 2019October 30, 2019

Looking Ahead to November and Beyond

Columns, The Mermaid Chronic(les) - a Column by Kala Godin

Wow, October feels like it was just yesterday. But it also felt like it took 45 years to end. What even is time? My book signing was on Oct. 2. ... Read more

November 5, 2019November 6, 2019

Taking Stock of the Advances in SMA Treatment and Research

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

Recently, I attended the 2019 Cure SMA Chapter and Leadership Conference in Boston. There, I connected with friends I had met through previous conferences and listened to presentations from ... Read more

November 4, 2019October 30, 2019

My Nighttime Anxiety Leads to Scary Imaginary Scenarios

Columns, The Wolf Finally Frees Itself - a column by Brianna Albers

I have this nagging feeling that I’m going to die in bed. My parents sleep in the basement, so when I need to be rolled at night, I scream ... Read more

November 1, 2019October 29, 2019

Autumn Brings a Bittersweet Feeling

Columns, Life, One Cup at a Time - a Column by Alyssa Silva

It is truly the most wonderful time of the year. As you read these words, I hope that you are envisioning me spinning in my wheelchair, wearing an oversized ... Read more

October 30, 2019October 28, 2019

Spending Time with Our Children Comes First

Columns, Five Servings of Strength- a column by Michael Casten

There are three Casten kids: Ava (12), Henry (11), and Ella (9). They each need our attention, and will ask for it periodically. Our life is quite crazy. Lindsay ... Read more

October 29, 2019October 25, 2019

Confronting Discrimination and Health Challenges Isn’t a Contest

Columns, The Mermaid Chronic(les) - a Column by Kala Godin

I looked up the definition of “minority group” the other day, and it was defined as “a group that is different racially, politically, etc., from a larger group of ... Read more

October 29, 2019October 25, 2019

Halloween Unlocks a Spirit of Imagination

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

It’s my favorite time of year. I love the fresh autumn breeze that brushes past my face every time I go outside and the fact that it’s socially acceptable ... Read more

October 25, 2019October 24, 2019

Adventures from the Pumpkin Patch: Overcoming Obstacles to Enjoy the Last Warm Days

Columns, From Where I Sit - a Column by Halsey Blocher

Summer has drawn to a close, and Mother Nature has begun painting the trees in beautiful fall colors. As fall arrives, the temperatures also begin to change. Unfortunately, cooler ... Read more