Columns

April 20, 2018April 19, 2018

The Never-ending Quest to Gain Weight

Columns, Life, One Cup at a Time - a Column by Alyssa Silva

Although Mother Nature seems to have other plans lately, the days crossed off our calendars have us inching closer and closer to summer. Ah, yes, summertime, when the weather ... Read more

April 18, 2018April 17, 2018

A Message for Us

Columns, Five Servings of Strength- a column by Michael Casten

An envelope covered in hearts and addressed to “Mom and Dad.” This envelope was kept secret for days, but there were hints that it was coming. Ella worked on ... Read more

April 17, 2018April 16, 2018

Adventures in the Big Apple (Part 1)

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

Before I go any further with this column, let me go ahead and get this out of the way: My parents are awesome, and I saw “Hamilton” on Broadway with ... Read more

April 13, 2018April 12, 2018

For My Best Friend, My Brother

Columns, Life, One Cup at a Time - a Column by Alyssa Silva

On April 10, social media exploded with pictures and posts pinned with #NationalSiblingsDay. Using it, people shared sweet or comical words about their siblings and what they mean to ... Read more

April 12, 2018April 11, 2018

An Update on My Spinraza Journey

Columns, Refined By Fire - a Column by Ryan Berhar

I haven’t updated my Spinraza journey for a while because, well, nothing has happened. But we are getting down to the wire. Something is about to happen — or not happen ... Read more

April 11, 2018April 10, 2018

‘Family Perspectives’: A Reflection on the Interviews

Columns, Five Servings of Strength- a column by Michael Casten

Editor’s note: Columnist Michael Casten caps his “Family Perspectives” series exploring how different people who surround Ella tackle the diagnosis of her SMA. Read an introduction to the series here. Three generations ... Read more

April 10, 2018April 9, 2018

How Having SMA Friends Has Helped Me

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

Growing up, I only had a handful of friends with SMA. As a result of my desire to be “normal,” I didn’t show much interest in engaging in any ... Read more

April 9, 2018April 6, 2018

Selfies Help Me Overcome Anxieties

Columns, The Wolf Finally Frees Itself - a column by Brianna Albers

I deactivated my Facebook account a while back, so I’m trying to be more active on other social media platforms. This is partly to keep in touch with people ... Read more

April 6, 2018April 5, 2018

3 Simple Techniques that Nurture Your Emotional Well-being

Columns, Life, One Cup at a Time - a Column by Alyssa Silva

While taking care of ourselves physically is always the number one priority, it is also mindful to nurture our emotional well-being in the same regard. Living with SMA means ... Read more

April 4, 2018April 3, 2018

Family Perspectives: Ella Sings Her Own Song

Columns, Five Servings of Strength- a column by Michael Casten

Editor’s note: Columnist Michael Casten continues his “Family Perspectives” series exploring how different people who surround Ella tackle the diagnosis of her SMA. Read an introduction to the series here. What is ... Read more

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