Columns

February 19, 2019February 15, 2019

Dear Parents: Let Your Kid with SMA Dream Big

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

To any parent who has a child with SMA: Recently, I had a conversation with my caregiver Randy about our goals for the future. We talked about career goals, ... Read more

February 18, 2019February 15, 2019

I’m Right Where I’m Supposed to Be

Columns, The Wolf Finally Frees Itself - a column by Brianna Albers

One of the hardest things about going through a crisis is feeling like you’re five years behind everyone. Facebook is dangerous because people are getting engaged, Twitter is depressing ... Read more

February 15, 2019February 14, 2019

How a Stranger’s Words Pulled Me Out of a Rut

Columns, Life, One Cup at a Time - a Column by Alyssa Silva

I always struggle with mental health at this time of year. Winter has that effect on me. Each year, I tell myself things will be different, so I map ... Read more

February 13, 2019February 12, 2019

Ella’s Smooth Clinic Appointment

Columns, Five Servings of Strength- a column by Michael Casten

An early morning rain lent itself to the Chicago traffic. The highway was backed up for miles and we had an hour to get to Ella’s Muscular Dystrophy Association ... Read more

February 12, 2019February 14, 2019

A Different Kind of Valentine’s Day

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

Full disclosure: I think Leif Erikson Day is far more legitimate than Valentine’s Day. Even though its popularity stems from the fictional universe of “SpongeBob SquarePants,” at least its ... Read more

February 11, 2019February 7, 2019

Finding Joy Amid Career Changes

Columns, The Wolf Finally Frees Itself - a column by Brianna Albers

It’s been a hard week. Half because I’m an emotional kiddo who takes everything twice as seriously as I should, and half because my life is changing in some ... Read more

February 8, 2019February 12, 2019

On Hiring New Caregivers

Columns, Life, One Cup at a Time - a Column by Alyssa Silva

Recently, one of our columnists, Kevin Schaefer, took to the SMA forums to discuss his experiences with hiring new caregivers. His portrayal of what these experiences entail certainly resonated ... Read more

February 7, 2019February 5, 2019

Advice from My Best Friend

Columns, Refined By Fire - a Column by Ryan Berhar

Last in a series. Read parts one, two, and three. To wrap up this series of conversations with people close to me, I interviewed my best friend, Sam DeVos. ... Read more

February 5, 2019February 1, 2019

Acquiring More Independence Is Exhausting, but Worth It

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

If someone asks me to speak in front of hundreds of people, I say “no problem.” Stick a needle in my neck for a Spinraza injection, and it’s no ... Read more

February 4, 2019January 31, 2019

I’m Ready for Whatever the Future Brings

Columns, The Wolf Finally Frees Itself - a column by Brianna Albers

I sat down this morning with the intention of writing a completely different column. Something about tattoos. I’ve been trying to get one since 2015, and finally, after years ... Read more

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