Columns

How SMA helps me understand my bisexuality, and vice versa

“People think bisexuals stereotypically can’t decide on which gender we want to have sex with, when the truth is, we can’t decide on anything,” someone in a group chat once joked. I laughed far longer than perhaps was appropriate, nodding along at the truth of the statement, at least in…

Pondering the ‘what ifs’ in life with rare disease

I spent a small fortune on cute books for the kindergarteners I taught at Brockman School, then a self-contained public school in Columbia, South Carolina. The students, many with severe disabilities, delighted in hearing the animated voices of the stories I read to them. My own children,…

Finding balance between excitement and routine in life with SMA

In every popular sitcom, there’s always a central setting for the characters to congregate. For some it’s a workplace, such as the Dunder Mifflin branch in “The Office” or the government building in “Parks and Recreation.” Other shows feature a shared living space, such as the geek-decorated apartment in “The…