Coming up with topics to write about can be a challenge. I was trying to settle on a topic yesterday, and it occurred to me that I have yet ... Read more
Dogs are great. We have two of them. Potter and Ginny are Hungarian hunting dogs; the breed is known as Vizsla (vee-z-shla). Vizslas are extremely family-friendly. They are known ... Read more
At the time of writing this, I’m sitting in my hotel room for the 2018 Annual Cure SMA Conference. My caregiver and his girlfriend are here with me, my ... Read more
Throughout my life, I have required assistance with the most basic tasks. Things like scratching my head, getting myself a drink, or picking something up off the floor are ... Read more
Dairy Queen Ice Cream Cake. A Cabbage Patch doll. Brush-tipped markers and a slime kit. A diary and a special drinking glass (filled with Hershey’s Kisses). All the goodies ... Read more
With my SMA, one might think that pretty much any kind of physical activity is out of the question for me. I use a power wheelchair, have severely limited ... Read more
I’ve been struggling to get back into the swing of things now that my friends are gone. And not just with schoolwork, either. Basically, anything that isn’t Dungeons & ... Read more
My father once made a promise to me as a little girl. I had been in the hospital’s intensive care unit for yet another respiratory infection, and he wanted ... Read more
Coffee and Mexican food: These are two of my greatest loves, and I once again enjoyed them today, the day I celebrated the one-year anniversary of my best friend ... Read more
Ella loves playgrounds despite being in a wheelchair hindering much of what she can do there. The area of the playground she has always gravitated toward is the swings. ... Read more
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