Columns

Being Rare Is All I’ve Ever Known

If you were to sort through my medical records, you would notice that some of the files list my diagnosis as “SMA I/II.” I had a good chuckle the first time I noticed this. After all, there is no such thing as spinal muscular atrophy type 1/2. I was originally…

Giving Thanks When It’s Not Easy

November is a month of personal celebrations and Thanksgiving, a favorite holiday. We’re prompted all month via marquees and commercials to give thanks. We shouldn’t need prompting. And it shouldn’t be a one-month effort. Granted, life isn’t easy for many. However, it usually takes little effort to…

Yennefer of ‘The Witcher’: A Study in Ableism and Power

For someone who has watched many a sex scene in movies and television, the sounds were unmistakable, yet unsurprising. Netflix’s “The Witcher,” based on a fantasy book series by Polish author Andrzej Sapkowski, pulls no punches when it comes to explicit imagery. Body horror, gore, nudity, and…

Giving Thanks for Our New Home

After many months of searching and navigating the challenges of house hunting with a disability (that’s a story for another day), I am extremely pleased to say that we have finally found our new home. And we’re just in time to celebrate the holiday season around the cozy, wood-burning fireplace!…

We’re Still in a Pandemic

In terms of “things I was expecting,” my mom coming down with COVID-19 was not one of them. The Albers family is notorious for doing too much at once. One of my caregivers often jokes that we’re the busiest people she knows. If we’re not renovating something, there’s a good…

Living With SMA Taught Me to Think Efficiently

Something you may not know about me is that I have a tendency to make a lot of impulsive decisions. Of course, when it comes to more complicated and serious matters that require tougher decisions to be made, I take my time and carefully examine the circumstances and craft well…