Subscribe to our mailing list

Get regular updates delivered to your email box.
Thank you for subscribing!

31 Days of SMA: The Things We Don’t Take For Granted

Kevin Schaeferby Kevin Schaefer

In 31 Days of SMA.

31 Days of SMA: The Things We Don’t Take For Granted
5
(1)

View this post on Instagram

Day 24 of 31 Days of SMA⁣⠀ Topic: The Things We Don’t Take for Granted⁣⠀ ⁣⠀ This is @stylesuitemc story⁣⠀ ⁣⠀ Yesterday I picked Brady up after an amazing 4 days of MDA Camp. He spent the whole ride home telling me about all the cool things he did this week – rode a horse, flew in a hot air balloon, won a gold medal in archery just to name a few. On our lunch date he told me about this new thing that MDA started doing at camp… each kiddo was asked to write down their one biggest wish. Like, something they’ve been wishing for a long time. Brady’s wish? That someday he will stand… It was said so matter of factly across the table, with no sadness or anger in his tone. That alone caught me off guard, because this conversation is usually had with so much emotion behind it… when he can’t join friends in an activity or feel uncomfortable from a day of being in his braces, this conversation happens. While we remain hopeful for a day that he can take a step, it’s the tiny everyday victories that get us excited the most. Being able to lift his arm up without assistance, spraying the water gun a little further than the week before and finally being able to use a metal fork instead of plastic. All the things able bodied folks take for granted, we celebrate. ⁣⠀ ⁣⠀ #SMAawarenessmonth #CureSMA

A post shared by SMANewsToday (@smanewstoday) on

  • Author Details
Kevin Schaefer

Kevin is a writer, podcaster, and lover of all things pop-culture. Diagnosed with SMA Type 2 at the age of 18 months, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. In addition to his weekly columns, he works as the Director of Forums for this site’s parent company, BioNews. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.

×
Kevin Schaefer

Kevin is a writer, podcaster, and lover of all things pop-culture. Diagnosed with SMA Type 2 at the age of 18 months, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. In addition to his weekly columns, he works as the Director of Forums for this site’s parent company, BioNews. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.

Latest Posts
  • wheelchair malfunction, movie theater
  • wheelchair malfunction, movie theater
  • stillness, friends, Disability Visibility, kidney stone, funcle, wonder, balance, change, adventures, X-Men, digestive problems, kevin smith, coronavirus, isolation, toys
  • stillness, friends, Disability Visibility, kidney stone, funcle, wonder, balance, change, adventures, X-Men, digestive problems, kevin smith, coronavirus, isolation, toys
Print This Page

How useful was this post?

Click on a star to rate it!

Average rating 5 / 5. Vote count: 1

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?

One comment

  1. MARD says:

    It is a joy indeed to celebrate every milestone and victory that my daughter achieves. She gets so excited when she started rolling on her sides all by herself. It’s a humbling journey why we don’t take these milestones for granted.

    Reply

Leave a Comment

Your email address will not be published. Required fields are marked *