31 Days of SMA: Singing Is My Great Passion and Therapy
Photo courtesy of Beth Whitby Day 11 of 31 This is Beth Whitby’s (@rolling_in_vintage) story: My name is Beth Whitby, I am 35 years old, and I have SMA type 2. I live in the U.K. with…
31 Days of SMA: I Almost Couldn’t Help Becoming an Advocate
Photo courtesy of Ben Mattlin Day 31 of 31 This is Ben Mattlin’s (@benmattlin) story: The disability rights movement in the U.S. is known for many achievements — the Individuals with Disabilities Education Act, blocking buses to…
Read more31 Days of SMA: The Power of a Positive Physician-Family Dynamic
Photo courtesy of Carolyn Saylor Day 10 of 31 This is Carolyn Saylor’s story: We live in a rural area in central Wisconsin, and when our daughter was diagnosed with SMA type 2 in 1991,…
31 Days of SMA: Opportunities Opened Up After I Accepted Myself
Photo courtesy of Tandin Dorji Day 9 of 31 This is Tandin Dorji’s story: I moved to the United States as a teenager with hopes of getting my disability cured in 2007. Since I was misdiagnosed with polio…
31 Days of SMA: My Goal Is Helping Others Progress Toward Theirs
Photo courtesy of Ali Ramos Day 8 of 31 This is Ali Ramos’ (@kittylegs) story: I started my career as a graphic designer, one who liked not having to interact with others unless it was about art.
31 Days of SMA: From the Playground — a Daughter’s Perspective
Photo courtesy of Samantha Przybylski Day 7 of 31 This is Scarlett Przybylski’s story: Hi, my name is Scarlett! I just turned 4. Next year I will turn 5! I had a Pokémon birthday, and Pikachu is my…
31 Days of SMA: I Realized My Goals with Perseverance
Photo courtesy of John Jones II Day 6 of 31 This is John Jones II’s story: I was diagnosed with SMA at a very young age, making it a part of my life since before my recollection. That…
31 Days of SMA: My Life’s Work Is Advocating for Others
Photo courtesy of Sarah Cheung Day 5 of 31 This is Sarah Cheung’s (@sarahpcheung) story: From a young age, I wanted to help others. I was crushed when I realized I could not become a nurse due to…
31 Days of SMA: I Write to Offer a Unique Perspective
Photo courtesy of Chaz Hayden Day 4 of 31 This is Chaz Hayden’s (@thechazhayden) story: Hey, friends! My name is Chaz, I’m 25 years old, and I have SMA type 1. I’m a soon-to-be-published author with…
31 Days of SMA: The Pandemic Gave Me Time to Rest
Photo courtesy of Ainaa Farhanah Amali Day 3 of 31 This is Ainaa Farhanah Amali’s (@ainaafrhanah) story: “Sweet, sour, salty, mixed” — that’s how I describe Year 2 of the COVID-19 pandemic, which of course has not…
31 Days of SMA: My Marriage Makes Good Things Happen
Photo courtesy of Rachel Stewart Day 2 of 31 This is Rachel Stewart’s story: Growing up, I didn’t have any role models with my disability, let alone know someone with SMA who was married, or in a queer…
