31 Days of SMA: People With SMA Can Follow Their Dreams
From left, Tonje, Morten, and baby Gulla. (Photo courtesy of Tonje Larsen) Day 6 of 31 This is Tonje…
Articles by Bionews Staff
31 Days of SMA: On Breaking Barriers and Keeping Hope Alive
Jose and his wife, Andrea. (Photo courtesy of Jose Flores) Day 5 of 31 This is Jose Flores’s (…
31 Days of SMA: On Becoming Miss Independence
Photo courtesy of Chessa Birrell Day 4 of 31 This is Chessa Birrell’s story: My name is Chessa Birrell.
31 Days of SMA: Instead of a Horse, I Got a Wheelchair
Photo courtesy of Stéphanie Houvet Day 3 of 31 This is Stéphanie Houvet’s (@stefookie) story: My name is…
31 Days of SMA: Facing My Challenges in Becoming a Mom
Megan DeJarnett, left in wheelchair, with her husband, Jake, and her sons Bronx, left, and Shai. (Photo courtesy of…
31 Days of SMA: Surviving Law School While Grappling With Illness
(Photo courtesy of Shaniqua Granby) Day 1 of 31 This is Shaniqua Granby’s (@shaniqua__niqua) story: A few people…
Increased Education Crucial to Improving Rare Disease Care, Survey Finds
Healthcare providers involved in diagnosing and treating rare diseases believe that increased physician education and collaboration with specialized facilities will…
Global Genes, Diversity Coalition Team Up to Advance Health Equity
Global Genes has partnered with the Rare Disease Diversity Coalition (RDDC) to advance health equity for rare disease…
Rare Disease Diversity Coalition Awards $600K to Combat Disparities
The Rare Disease Diversity Coalition (RDDC) awarded $600,000 in grants to ease the disparities faced by rare disease patients of…
‘Rare’ Documentary in Kickstarter Campaign to Raise $45K by Oct. 28
A crowdfunding campaign aims to raise $45,000 to support “Rare,” a documentary film featuring the struggles and achievements of people…