Author Archives: BNS Staff

31 Days of SMA: I Almost Couldn’t Help Becoming an Advocate

Photo courtesy of Ben Mattlin Day 31 of 31 This is Ben Mattlin’s (@benmattlin) story: The disability rights movement in the U.S. is known for many achievements — the Individuals with Disabilities Education Act, blocking buses to demand accessible transit, the Capitol Crawl. But its crowning accomplishment to…

31 Days of SMA: Let’s Work Together to Change Expectations

Photo courtesy of Carissa Decelles Day 26 of 31 This is Carissa Decelles’ (@rheelgirl) story: Hello! My name is Carissa, and I am a 30-year-old, award-winning art director and graphic designer from eastern Connecticut. I also happen to have SMA type 2. SMA has never been a…

31 Days of SMA: My Daughter Is Beauty in Motion

Photo courtesy of Michael Garcia Day 24 of 31 This is Michael Garcia’s (@teacher.mike72) story: I believe in miracles. I believe in God. I believe in his will both on earth and in heaven. Nearly two years ago, we contacted our family pediatrician to inform him that our…

31 Days of SMA: You Are Worth a Closer Look

Photo courtesy of Lana del Roll Day 23 of 31 This is Lana del Roll’s (@lanadelroll_official) story: If you have a disability, you are worth a closer look. Those who can see the real you will find you and stay forever. Because you are not a disability; you…

31 Days of SMA: My Disability Is Very Much a Part of Me

Photo courtesy of LaMondré Pough Day 22 of 31 This is LaMondré Pough’s (lamondre_p) story: Everyone has a desire to be seen. When I say that, I’m not talking about a gratuitous need for attention, or someone stricken with the “pick me” syndrome. I’m talking about the recognition…